This MODEST_DATASET_ReadMe.txt file was generated on 2023-02-15 by Emma Caton GENERAL INFORMATION 1. Title of Dataset: The use of culturally adapted and translated depression screening questionnaires with South Asian haemodialysis patients in England 2. Author Information Name: Shivani Sharma Institution: University of Hertfordshire Address: School of Life and Medical Sciences, University of Hertfordshire, Hatfield, Hertfordshire, AL10 9AB Email: s.3.sharma@herts.ac.uk Name: Sam Norton Institution: King's College London Name: Kamaldeep Bhui Institution: University of Oxford Name: Roisin Mooney Institution: University of Hertfordshire Name: Emma Caton Institution: University of Hertfordshire Name: Tarun Bansal Institution: Bradford Teaching Hospitals NHS Foundation Trust Name: Clara Day Institution: University Hospitals Birmingham NHS Founation Trust Name: Andrew Davenport Institution: Royal Free and University College Hospital Medical School Name: Neill Duncan Institution: Imperial College Healthcare NHS Trust Name: Philip A Kalra Institution: Salford Royal NHS Foundation Trust Name: Maria Da Silva-Gane Institution: East and North Hertfordshire NHS Trust Name: Gurch Randhawa Institution: University of Bedfordshire Name: Graham Warwick Institution: University Hospitals of Leicester NHS Trust Name: David Wellsted Institution: University of Hertfordshire Name: Magdi Yaqoob Institution: Barts Health NHS Trust Name: Ken Farrington Institution: East and North Hertfordshire NHS Trust 3. Date of data collection: June 2015 - February 2017 4. Geographical location of data collection: England 5. Information about funding sources that supported the collection of the data: None SHARING/ACCESS INFORMATION 1. Licences/restrictions placed on the data: CC-BY 2. Links to publication that cite or use the data: https://doi.org/10.1371/journal.pone.0284090 3. Recommended citation for this dataset: DATA & FILE OVERVIEW 1. File List: There is one data file (MODEST_dataset.csv) 2. Additional related data collected that was not included in the current data package: This dataset has been minimalised to conform with research ethics and contractual obligations. Only variables required for replication of the psychometric and diagnostic accuracy analysis have been provided. 3. Are there multiple versions of the dataset? No METHODOLOGICAL INFORMATION 1. Description of methods used for collection/generation of data: Patients completed three depression screening tools which had been culturally-adapted and translated in the four most common South Asian languages spoken amongst haemodialysis patients in England: Gujarati, Punjabi, Urdu and Bengali. The depression screening tools used were the Patient Health Questionnaire (PHQ-9), the Centre for Epidemiological Studies Depression Scale Revised (CESD-R), and the Beck Depression Inventory II (BDI-II). We also assessed the Whooley Questions recommended by the National Institute for Health and Care Excellence (NICE) as a brief screen for depression. Patients were approached about the study during visits for in-centre haemodialysis. Those interested were contacted by a bilingual project worker to explain the research further and to arrange participation. The project worker either handed patients the questionnaires to self-complete or supported them by reading out items and noting answers. All patients were offered the opportunity to take part in a follow-up diagnostic interview using the Clinical Interview Schedule Revised (CIS-R). A comparative sample of white-European English-speaking patients completed the depression screening measures only. 2. Methods for processing the data: Data were analysed using Mplus (Version 7.4) 3. Instrument- or software-specific information needed to interpret the data: Mplus (Version 7.4) DATA-SPECIFIC INFORMATION FOR MODEST_dataset.cvs 1. Number of variables: 57 2. Number of cases/rows: 349 3. Specialized formats or other abbreviations used: CIS-R: Clinical Interview Schedule Revised (Lewis G, Pelosi AJ, Araya R, Dunn G. Measuring psychiatric disorder in the community: a standardized assessment for use by lay interviewers. Psychol Med. 1992;22: 465–486. doi:10.1017/S0033291700030415) PHQ-9: Patient Health Questionnaire (Kroenke K, Spitzer RL. The PHQ-9: A New Depression Diagnostic and Severity Measure. Psychiatr Ann. 2002;32: 509–515. doi:10.3928/0048-5713-20020901-06) CESD-R: Centre for Epidemiological Studies Depression Scale Revised (Eaton WW, Smith C, Ybarra M, Muntaner C, Allen T. Center for Epidemiologic Studies Depression Scale: Review and Revision (CESD and CESD-R). In: Maruish ME, editor. The use of psychological testing for treatment planning and outcomes assessment: Instruments for adults. Lawrence Erlbaum Associates Publishers; 2004. pp. 363–377) BDI-II: Beck Depression Inventory II (Beck AT, Steer RA, Brown GK. Beck Depression Inventory-II. San Antonio . 1996;78: 490–498) 4. Variable List: a. ID: Anonymised study ID for each participant b. Gender: Participant gender c. Language: Language of translated depression screening questionnaires (Gujarati, Punjabi, Urdu, Bengali, English) d. CISRdiag: Severity of major depressive disorder according to the CIS-R (None, Mild, Moderate, Severe) e. CISRdep: Indicator of whether the CIS-R resulted in a positive result for major depressive disorder (0= No, 1= Yes) f. Whooley1: Score for Whooley Question 1 (1= No, 2= Yes) g. Whooley2: Score for Whooley Question 2 (1= No, 2= Yes) h. PHQ_9_1: Score for PHQ_9 Question 1 (0= Not at all, 1= Several days, 2= More than half the days, 3= Nearly every day) i. PHQ_9_2: Score for PHQ_9 Question 2 (0= Not at all, 1= Several days, 2= More than half the days, 3= Nearly every day) j. PHQ_9_3: Score for PHQ_9 Question 3 (0= Not at all, 1= Several days, 2= More than half the days, 3= Nearly every day) k. PHQ_9_4: Score for PHQ_9 Question 4 (0= Not at all, 1= Several days, 2= More than half the days, 3= Nearly every day) l. PHQ_9_5: Score for PHQ_9 Question 5 (0= Not at all, 1= Several days, 2= More than half the days, 3= Nearly every day) m. PHQ_9_6: Score for PHQ_9 Question 6 (0= Not at all, 1= Several days, 2= More than half the days, 3= Nearly every day) n. PHQ_9_7: Score for PHQ_9 Question 7 (0= Not at all, 1= Several days, 2= More than half the days, 3= Nearly every day) o. PHQ_9_8: Score for PHQ_9 Question 8 (0= Not at all, 1= Several days, 2= More than half the days, 3= Nearly every day) p. PHQ_9_9: Score for PHQ_9 Question 9 (0= Not at all, 1= Several days, 2= More than half the days, 3= Nearly every day) q. CESD_R_1: Score for CESD_R Question 1 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) r. CESD_R_2: Score for CESD_R Question 2 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) s. CESD_R_3: Score for CESD_R Question 3 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) t. CESD_R_4: Score for CESD_R Question 4 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) u. CESD_R_5: Score for CESD_R Question 5 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) v. CESD_R_6: Score for CESD_R Question 6 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) w. CESD_R_7: Score for CESD_R Question 7 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) x. CESD_R_8: Score for CESD_R Question 8 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) y. CESD_R_9: Score for CESD_R Question 9 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) z. CESD_R_10: Score for CESD_R Question 10 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) aa. CESD_R_11: Score for CESD_R Question 11 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) ab. CESD_R_12: Score for CESD_R Question 12 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) ac. CESD_R_13: Score for CESD_R Question 13 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) ad. CESD_R_14: Score for CESD_R Question 14 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) ae. CESD_R_15: Score for CESD_R Question 15 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) af. CESD_R_16: Score for CESD_R Question 16 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) ag. CESD_R_17: Score for CESD_R Question 17 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) ah. CESD_R_18: Score for CESD_R Question 18 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) ai. CESD_R_19: Score for CESD_R Question 19 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) aj. CESD_R_20: Score for CESD_R Question 20 (0= Not at all or less than one day, 1= One or two days, 2= Three to four days, 3= Five to seven days, 4= Nearly every day for two weeks) ak. BDI_II_1: Score for BDI_II Question 1 al. BDI_II_2: Score for BDI_II Question 2 am. BDI_II_3: Score for BDI_II Question 3 an. BDI_II_4: Score for BDI_II Question 4 ao. BDI_II_5: Score for BDI_II Question 5 ap. BDI_II_6: Score for BDI_II Question 6 aq. BDI_II_7: Score for BDI_II Question 7 ar. BDI_II_8: Score for BDI_II Question 8 as. BDI_II_9: Score for BDI_II Question 9 at. BDI_II_10: Score for BDI_II Question 10 au. BDI_II_11: Score for BDI_II Question 11 av. BDI_II_12: Score for BDI_II Question 12 aw. BDI_II_13: Score for BDI_II Question 13 ax. BDI_II_14: Score for BDI_II Question 14 ay. BDI_II_15: Score for BDI_II Question 15 az. BDI_II_16: Score for BDI_II Question 16 ba. BDI_II_17: Score for BDI_II Question 17 bb. BDI_II_18: Score for BDI_II Question 18 bc. BDI_II_19: Score for BDI_II Question 19 bd. BDI_II_20: Score for BDI_II Question 20 be. BDI_II_21: Score for BDI_II Question 21