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Browsing by Author "Mengoni, Silvana"
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Definition, assessment and management of frailty for people with intellectual disabilities: A scoping review.
Grohmann, Dominique; Wellsted, David; Mengoni, Silvana (2024-05)Background: People with intellectual disabilities may experience frailty earlier than the general population. This scoping review aimed to investigate how frailty is defined, assessed, and managed in adults with an ... -
Developing key working
Mengoni, Silvana; Oates, John; Bardsley, Janet (Council for Disabled Children, 2014)The aim of this ‘Developing Key Working’ Guide is to offer guidance to those involved in developing, managing and delivering key working. The primary audience is commissioners and managers in local areas and in the private, ... -
Developmental Journal for Children and Young People with Multiple Needs
Mengoni, Silvana; Oates, John (National Children's Bureau: London, 2013)The Developmental Journal for Children and Young People with Multiple Needs has been produced to help families and practitioners support the achievements of children whose development is affected by multiple factors that ... -
Do people with intellectual disabilities understand their prescription medication? A scoping review
Smith, Megan; Adams, Danielle; Carr, Claudia; Mengoni, Silvana (2019-11-01)Background: People with intellectual disabilities are more likely to experience poor health than the general population and are frequently prescribed multiple medications. Therefore, it is important that people with ... -
Early Years Developmental Journal
Oates, John; Mengoni, Silvana (National Children's Bureau: London, 2013)The Early Years Developmental Journal is designed for families, practitioners and others to use as a way of recording, celebrating and supporting children's progress. It is also for people who who would like to find out ... -
Energy Matching of a High Intensity Exercise Protocol with a Low Intensity Exercise Protocol in Young People
Bottoms, Lindsay; Howlett, Neil; Chater, Angel; Jones, Andy; Jones, Julia; Wyatt, Solange; Mengoni, Silvana; Sharma, Shivani; Irvine, Karen; Trivedi, Daksha; Wellsted, David (2021-12) -
Epilepsy in people with learning disabilities : Evaluating a novel intervention
Gates, Robert; Mengoni, Silvana; Durand, Marie-Anne (2015)This article reports on an on-going novel feasibility randomised controlled trial [RCT] that is being undertaken to inform the design of a definitive RCT, which will assess the impact of Getting on with Epilepsy, from the ... -
Evaluating health visitors’ existing knowledge of Down syndrome and the effect of a training workshop
Mengoni, Silvana; Redman, Sandra (2019-03-01)Children with Down syndrome are at an increased risk of health and development issues in early childhood, therefore monitoring their development and identifying health conditions as early as possible is critical. Health ... -
An evaluation of key working for families of children and young people with special educational needs and disabilities
Mengoni, Silvana; Bardsley, Janet; Oates, John (2015-12-01)Key working is a way of supporting children and young people with special educational needs and disabilities (SEND) and their families, and is highly regarded by families and practitioners. However, there is a lack of ... -
Experiences of feeding young children with Down Syndrome: Parents’ and health professionals’ perspectives
Mengoni, Silvana; Smith, Bobbie; Wythe, Helena; Rogers, Samantha (2023-12-06)Background: Children with Down syndrome are commonly reported to experience feeding problems in the early years. This study aimed to explore and synthesise the experiences of feeding young children with Down syndrome from ... -
The experiences of new mothers accessing feeding support for infants with Down syndrome during the COVID-19 pandemic
Hielscher, Laura; Ludlow, Amanda; Mengoni, Silvana; Rogers, Samantha; Irvine, Karen (2022-08-14)Infants with Down syndrome are more likely to experience feeding problems and mothers are likely to require more feeding support than mothers of typically developing infants. During the COVID-19 pandemic, many feeding ... -
Exploring the training needs of health visitors working with children with Down syndrome: A pilot study : A lay summary
Mengoni, Silvana; Redman, Sandra (2016)This is a non-academic summary of the results from the project "Exploring the training needs of health visitors working with children with Down syndrome: A pilot study". -
Feasibility study of a randomised controlled trial to investigate the effectiveness of using a humanoid robot to improve the social skills of children with an Autism Spectrum Disorder (Kaspar RCT): A Study Protocol
Mengoni, Silvana; Irvine, Karen; Thakur, Deepshikha; Barton, Garry; Dautenhahn, Kerstin; Guldberg, Karen; Robins, Ben; Wellsted, David; Sharma, Shivani (2017-06-22)Introduction: Interventions using robot-assisted therapy may be beneficial for the social skills development of children with autism spectrum disorder (ASD), however randomised controlled trials (RCTs) are lacking. The ... -
Health monitoring of young children with Down syndrome: A parent-report study
Mengoni, Silvana; Redman, Sandra (2020-02-05)Background: Children with Down syndrome have an increased risk of serious health conditions, particularly in early childhood. Published guidelines promote the identification and monitoring of health issues and adherence ... -
An intervention for people with learning disabilities and epilepsy
Mengoni, Silvana; Gates, Bob; Durand, Marie-Anne (2015-03-02)Epilepsy is relatively common in people with learning disabilities, and can be complex and refractory to treatment, with negative effects on quality of life and service costs. This article describes a randomised controlled ... -
“It was really good, she sort of took some words what happened, like what I would say”: Adapting dyadic interview techniques to capture the stories of marginalised voices in research
Head, Annabel; Ellis-Caird, Helen; Rhodes, Louisa; Mengoni, Silvana (2021-03-01)Qualitative research continues to rely heavily on verbal language from solely the participant, which often omits the lived experiences of many people across a range of populations. This paper describes adaptations to an ... -
Parents’ experiences of health visiting for children with Down syndrome
Mengoni, Silvana; Redman, Sandra (2018-07-02)Children with Down syndrome have an increased likelihoodof experiencing serious health conditions. Health visitors canhave an important role in monitoring and promoting healthand development for young children with Down ... -
People with intellectual disabilities are often not told about their medicines and their potential side effects
Carr, Claudia; Mengoni, Silvana (2019-08-01) -
A pilot evaluation of a novel tool to assess risk of frailty in people living with a learning disability
Grohmann, Dominique; Mengoni, Silvana; Wellsted, David (Health Innovation East, 2023-08-16) -
Relationships between feeding problems, eating behaviours and parental feeding practices in children with Down syndrome: a cross-sectional study
Rogers, Samantha; Smith, Bobbie; Mengoni, Silvana (2022-03)Background: Research investigating feeding problems in children with Down syndrome is scarce. This study investigated feeding problems, eating behaviours and parental feeding practices in children with Down syndrome (n=40), ...