Show simple item record

dc.contributor.authorNash, Avril
dc.contributor.authorMcAteer, Helen
dc.contributor.authorSchofield, Julia
dc.contributor.authorPenzer, Rebecca
dc.contributor.authorGilbert, Annie
dc.date.accessioned2015-06-25T11:20:59Z
dc.date.available2015-06-25T11:20:59Z
dc.date.issued2015-07
dc.identifier.citationNash , A , McAteer , H , Schofield , J , Penzer , R & Gilbert , A 2015 , ' Psoriasis today: experiences of healthcare and impact on quality of life in a major UK cohort ' , Primary Health Care Research and Development , vol. 16 , no. 4 , pp. 415-423 . https://doi.org/10.1017/S1463423614000450
dc.identifier.issn1463-4236
dc.identifier.otherPURE: 682833
dc.identifier.otherPURE UUID: d159b483-547e-4b14-9ded-2f7b19980708
dc.identifier.otherScopus: 84965185082
dc.identifier.urihttp://hdl.handle.net/2299/16085
dc.description.abstractAim: To establish how people with psoriasis in the United Kingdom today experience living with their condition including diagnosis, treatment, healthcare provision and impact on daily life. Background: Psoriasis is a debilitating long-term inflammatory skin disease which can result in severe itching, discomfort and soreness, and may be associated with problems beyond the specific symptoms related to the skin. For many it is accompanied by difficult-to-manage treatment regimes, emotional distress and a negative impact on their quality of life and psychosocial functioning. To date there is little published information about the health experiences of people in the United Kingdom with psoriasis. Methods A postal self-administered questionnaire was completed by members of the Psoriasis Association and the responses analysed (n=1564). Findings The findings suggest some similarities to surveys in other nations, but specifically highlighted that patients feel under-informed and are dissatisfied with current treatment regimes. Responses provided an insight into aspects of the condition that treatments should be targeting. Specific areas of negative impact on psychosocial functioning were identified, including the lack of available support for those experiencing emotional distress. The research provides important information about how the care of patients with psoriasis can be improved, especially at primary care level. This includes: improved training in psoriasis knowledge and awareness at general practitioner level and greater use of dermatology specialist nurses in primary care settings; more effective and manageable treatment regimes that target visible areas and general well-being; greater support for emotional distress and psychosocial functioning.en
dc.language.isoeng
dc.relation.ispartofPrimary Health Care Research and Development
dc.rightsEmbargoed
dc.subjectpsoriasis;
dc.subjectemotional distress
dc.subjectpsychosocial functioning
dc.subjectspecialist dermatology nurse
dc.subjecttopical treatments
dc.titlePsoriasis today: experiences of healthcare and impact on quality of life in a major UK cohorten
dc.contributor.institutionDepartment of Adult Nursing and Primary Care
dc.contributor.institutionHealth & Human Sciences Research Institute
dc.contributor.institutionCentre for Postgraduate Medicine
dc.contributor.institutionOlder People's Health and Complex Conditions
dc.contributor.institutionCentre for Research in Public Health and Community Care
dc.contributor.institutionHealth, Young People and Family Lives
dc.contributor.institutionNursing, Midwifery and Social Work
dc.description.statusPeer reviewed
dc.date.embargoedUntil2015-05-05
dc.description.versiontypeFinal Accepted Version
dcterms.dateAccepted2015-07
rioxxterms.versionSMUR
rioxxterms.versionSMUR
rioxxterms.versionAM
rioxxterms.versionofrecordhttps://doi.org/10.1017/S1463423614000450
rioxxterms.licenseref.startdate2015-05-05
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue
herts.date.embargo2015-05-05
herts.rights.accesstypeEmbargoed


Files in this item

Thumbnail

This item appears in the following Collection(s)

Show simple item record