Show simple item record

dc.contributor.authorMayrhofer, Andrea
dc.contributor.authorMathie, Elspeth
dc.contributor.authorMcKeown, Jane
dc.contributor.authorGoodman, Claire
dc.contributor.authorIrvine, Lisa
dc.contributor.authorHall, Natalie
dc.contributor.authorWalker , Mike
dc.date.accessioned2018-09-11T00:12:01Z
dc.date.available2018-09-11T00:12:01Z
dc.date.issued2018-08-19
dc.identifier.citationMayrhofer , A , Mathie , E , McKeown , J , Goodman , C , Irvine , L , Hall , N & Walker , M 2018 , ' Young onset dementia: Public involvement in co-designing community-based support ' , Dementia: International Journal of Social Research and Practice , pp. 1-16 . https://doi.org/10.1177/1471301218793463
dc.identifier.issn1471-3012
dc.identifier.otherPURE: 15205071
dc.identifier.otherPURE UUID: e619e277-993e-4056-b1c0-e61806550291
dc.identifier.otherScopus: 85052586455
dc.identifier.urihttp://hdl.handle.net/2299/20544
dc.description.abstractWhilst the support requirements of people diagnosed with young onset dementia are well-documented, less is known about what needs to be in place to provide age-appropriate care. To understand priorities for service planning and commissioning and to inform the design of a future study of community-based service delivery models, we held two rounds of discussions with four groups of people affected by young onset dementia (n = 31) and interviewed memory services (n = 3) and non-profit service providers (n = 7) in two sites in England. Discussions confirmed published evidence on support requirements, but also reframed priorities for support and suggested new approaches to dementia care at the community level. This paper argues that involving people with young onset dementia in the assessment of research findings in terms of what is important to them, and inviting suggestions for solutions, provides a way for co-designing services that address the challenges of accessing support for people affected by young onset dementia.en
dc.format.extent16
dc.language.isoeng
dc.relation.ispartofDementia: International Journal of Social Research and Practice
dc.rightsOpen
dc.subjectAge-appropriate dementia care
dc.subjectco-production
dc.subjectcontinuity
dc.subjectyoung onset dementia
dc.subjectSociology and Political Science
dc.subjectSocial Sciences(all)
dc.titleYoung onset dementia: Public involvement in co-designing community-based supporten
dc.contributor.institutionCentre for Research in Public Health and Community Care
dc.contributor.institutionOlder People's Health and Complex Conditions
dc.contributor.institutionSchool of Health and Social Work
dc.contributor.institutionPatient Experience and Public Involvement
dc.contributor.institutionNursing, Midwifery and Social Work
dc.contributor.institutionSchool of Life and Medical Sciences
dc.contributor.institutionCentre for Health Services and Clinical Research
dc.contributor.institutionHealth Research Methods Unit
dc.description.statusPeer reviewed
dc.identifier.urlhttp://www.scopus.com/inward/record.url?scp=85052586455&partnerID=8YFLogxK
dc.relation.schoolSchool of Health and Social Work
dc.relation.schoolSchool of Life and Medical Sciences
dc.description.versiontypeFinal Published version
dcterms.dateAccepted2018-08-19
rioxxterms.versionVoR
rioxxterms.versionofrecordhttps://doi.org/10.1177/1471301218793463
rioxxterms.licenseref.urihttp://creativecommons.org/licenses/by/4.0/
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue
herts.rights.accesstypeOpen


Files in this item

Thumbnail

This item appears in the following Collection(s)

Show simple item record