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dc.contributor.authorVan-Os, Sandra
dc.contributor.authorRyder, Nuala
dc.contributor.authorHart, Daniel
dc.contributor.authorTroop, Nicholas
dc.date.accessioned2020-02-15T01:29:05Z
dc.date.available2020-02-15T01:29:05Z
dc.date.issued2020-01-28
dc.identifier.citationVan-Os , S , Ryder , N , Hart , D & Troop , N 2020 , ' Adherence to prophylaxis in adolescents and young adults with severe haemophilia: a qualitative study with healthcare professionals ' , Health Psychology and Behavioral Medicine , vol. 8 , no. 1 , pp. 55-72 . https://doi.org/10.1080/21642850.2020.1718501
dc.identifier.issn2164-2850
dc.identifier.otherORCID: /0000-0002-4509-494X/work/68990567
dc.identifier.urihttp://hdl.handle.net/2299/22243
dc.description© 2020 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
dc.description.abstractAim: to examine healthcare professionals’ (HP) perceptions and experiences in relation to adherence to prophylactic treatment among young people living with haemophilia (YPH). Methods: All HPs in four haemophilia centres across England and Wales were invited to participate, and all HPs who agreed to take part (n = 6) were interviewed. Interviews were audio-recorded, transcribed and then analysed using Interpretative Phenomenological Analysis (IPA). Results: HPs estimate that generally young people with haemophilia keep to their treatment regimen well, although they also recognise that adherence may fluctuate with many patients going through shorter periods of non-adherence. The increasingly personalised or flexible approach to prophylaxis makes it harder to assess adherence. The main themes identified through IPA included (1) HPs’ suggest that adherence fluctuates (2) Non-adherence is mainly driven by lifestyle and developmental, social and family factors, and (3) Education, HPs’ sensitivity to individual needs, and psychological and peer support are key facilitators of good adherence. Conclusion: The increasingly flexible approach to prophylaxis requires a new way of thinking about, and assessment of, adherence. More personalised treatment regimen can be more complicated and may, therefore, lead to accidental non-adherence. The results of this study with HPs complement those of a previous qualitative study with patients but place greater emphasis on a broader perspective on understanding drivers of non-adherence as well as understanding strategies to improve adherence in the minority of patients who appear to struggle.en
dc.format.extent18
dc.format.extent1502640
dc.language.isoeng
dc.relation.ispartofHealth Psychology and Behavioral Medicine
dc.subjectAdherence
dc.subjectadolescents and young adults
dc.subjecthaemophilia
dc.subjectpersonalised treatment
dc.subjectprophylaxis
dc.subjectPsychology(all)
dc.subjectBehavioral Neuroscience
dc.subjectHealth(social science)
dc.titleAdherence to prophylaxis in adolescents and young adults with severe haemophilia: a qualitative study with healthcare professionalsen
dc.contributor.institutionSchool of Life and Medical Sciences
dc.contributor.institutionDepartment of Psychology and Sports Sciences
dc.contributor.institutionPsychology
dc.contributor.institutionCentre for Research in Psychology and Sport Sciences
dc.contributor.institutionPsycho-haematology Research Unit
dc.contributor.institutionHealth and Clinical Psychology Research Group
dc.contributor.institutionBehaviour Change in Health and Business
dc.contributor.institutionWeight and Obesity Research Group
dc.contributor.institutionLearning, Memory and Thinking
dc.contributor.institutionDepartment of Psychology, Sport and Geography
dc.description.statusPeer reviewed
dc.identifier.urlhttp://www.scopus.com/inward/record.url?scp=85080825362&partnerID=8YFLogxK
rioxxterms.versionofrecord10.1080/21642850.2020.1718501
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue


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