dc.contributor.author | Van-Os, Sandra | |
dc.contributor.author | Ryder, Nuala | |
dc.contributor.author | Hart, Daniel | |
dc.contributor.author | Troop, Nicholas | |
dc.date.accessioned | 2020-02-15T01:29:05Z | |
dc.date.available | 2020-02-15T01:29:05Z | |
dc.date.issued | 2020-01-28 | |
dc.identifier.citation | Van-Os , S , Ryder , N , Hart , D & Troop , N 2020 , ' Adherence to prophylaxis in adolescents and young adults with severe haemophilia: a qualitative study with healthcare professionals ' , Health Psychology and Behavioral Medicine , vol. 8 , no. 1 , pp. 55-72 . https://doi.org/10.1080/21642850.2020.1718501 | |
dc.identifier.issn | 2164-2850 | |
dc.identifier.other | ORCID: /0000-0002-4509-494X/work/68990567 | |
dc.identifier.uri | http://hdl.handle.net/2299/22243 | |
dc.description | © 2020 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. | |
dc.description.abstract | Aim: to examine healthcare professionals’ (HP) perceptions and experiences in relation to adherence to prophylactic treatment among young people living with haemophilia (YPH). Methods: All HPs in four haemophilia centres across England and Wales were invited to participate, and all HPs who agreed to take part (n = 6) were interviewed. Interviews were audio-recorded, transcribed and then analysed using Interpretative Phenomenological Analysis (IPA). Results: HPs estimate that generally young people with haemophilia keep to their treatment regimen well, although they also recognise that adherence may fluctuate with many patients going through shorter periods of non-adherence. The increasingly personalised or flexible approach to prophylaxis makes it harder to assess adherence. The main themes identified through IPA included (1) HPs’ suggest that adherence fluctuates (2) Non-adherence is mainly driven by lifestyle and developmental, social and family factors, and (3) Education, HPs’ sensitivity to individual needs, and psychological and peer support are key facilitators of good adherence. Conclusion: The increasingly flexible approach to prophylaxis requires a new way of thinking about, and assessment of, adherence. More personalised treatment regimen can be more complicated and may, therefore, lead to accidental non-adherence. The results of this study with HPs complement those of a previous qualitative study with patients but place greater emphasis on a broader perspective on understanding drivers of non-adherence as well as understanding strategies to improve adherence in the minority of patients who appear to struggle. | en |
dc.format.extent | 18 | |
dc.format.extent | 1502640 | |
dc.language.iso | eng | |
dc.relation.ispartof | Health Psychology and Behavioral Medicine | |
dc.subject | Adherence | |
dc.subject | adolescents and young adults | |
dc.subject | haemophilia | |
dc.subject | personalised treatment | |
dc.subject | prophylaxis | |
dc.subject | Psychology(all) | |
dc.subject | Behavioral Neuroscience | |
dc.subject | Health(social science) | |
dc.title | Adherence to prophylaxis in adolescents and young adults with severe haemophilia: a qualitative study with healthcare professionals | en |
dc.contributor.institution | School of Life and Medical Sciences | |
dc.contributor.institution | Department of Psychology and Sports Sciences | |
dc.contributor.institution | Psychology | |
dc.contributor.institution | Centre for Research in Psychology and Sport Sciences | |
dc.contributor.institution | Psycho-haematology Research Unit | |
dc.contributor.institution | Health and Clinical Psychology Research Group | |
dc.contributor.institution | Behaviour Change in Health and Business | |
dc.contributor.institution | Weight and Obesity Research Group | |
dc.contributor.institution | Learning, Memory and Thinking | |
dc.contributor.institution | Department of Psychology, Sport and Geography | |
dc.description.status | Peer reviewed | |
dc.identifier.url | http://www.scopus.com/inward/record.url?scp=85080825362&partnerID=8YFLogxK | |
rioxxterms.versionofrecord | 10.1080/21642850.2020.1718501 | |
rioxxterms.type | Journal Article/Review | |
herts.preservation.rarelyaccessed | true | |