dc.contributor.author | Caton, Emma | |
dc.contributor.author | Sharma, Shivani | |
dc.contributor.author | Vilar, Enric | |
dc.contributor.author | Farrington, Ken | |
dc.date.accessioned | 2023-09-27T21:00:00Z | |
dc.date.available | 2023-09-27T21:00:00Z | |
dc.date.issued | 2023-09-12 | |
dc.identifier.citation | Caton , E , Sharma , S , Vilar , E & Farrington , K 2023 , ' Measures of treatment burden in dialysis: A scoping review ' , Journal of Renal Care , pp. 1-11 . https://doi.org/10.1111/jorc.12480 | |
dc.identifier.issn | 1755-6678 | |
dc.identifier.other | Jisc: 1332770 | |
dc.identifier.other | publisher-id: jorc12480 | |
dc.identifier.uri | http://hdl.handle.net/2299/26779 | |
dc.description | © 2023 The Authors. Journal of Renal Care published by John Wiley & Sons Ltd on behalf of European Dialysis & Transplant Nurses Association/European Renal Care Association. This is an open access article distributed under the terms of the Creative Commons Attribution License (CC BY), https://creativecommons.org/licenses/by/4.0/ | |
dc.description.abstract | Background Dialysis is a life-sustaining treatment for patients with advanced kidney failure, but it is extremely burdensome. Despite this, there are very few tools available to assess treatment burden within the dialysis population. Objective To conduct a scoping review of generic and disease-specific measures of treatment burden in chronic kidney disease, and assess their suitability for use within the dialysis population. Design We searched CINAHL, MEDLINE and the Cochrane Library for kidney disease-specific measures of treatment burden. Studies were initially included if they described the development, validation or use of a treatment burden measure or associated concept (e.g., measures of treatment satisfaction, quality of life, illness intrusiveness, disease burden etc.) in adult patients with chronic kidney disease. We also updated a previous scoping review exploring measures of treatment burden in chronic disease to identify generic treatment burden measures. Results One-hundred and two measures of treatment burden or associated concepts were identified. Four direct measures and two indirect measures of treatment burden were assessed, using adapted established criteria, for suitability for use within the dialysis population. The researchers outlined eight key dimensions of treatment burden: medication, financial, administrative, lifestyle, health care, time/travel, dialysis-specific factors, and health inequality. None of the measures adequately assessed all dimensions of treatment burden. Conclusion Current measures of treatment burden in dialysis are inadequate to capture the spectrum of issues that matter to patients. There is a need for dialysis-specific burdens and health inequality to be assessed when exploring treatment burden to advance patient care. | en |
dc.format.extent | 11 | |
dc.format.extent | 1593568 | |
dc.language.iso | eng | |
dc.relation.ispartof | Journal of Renal Care | |
dc.subject | health inequality | |
dc.subject | scoping review | |
dc.subject | dialysis | |
dc.subject | measures | |
dc.subject | treatment burden | |
dc.title | Measures of treatment burden in dialysis: A scoping review | en |
dc.contributor.institution | School of Life and Medical Sciences | |
dc.contributor.institution | Centre for Future Societies Research | |
dc.contributor.institution | Department of Psychology, Sport and Geography | |
dc.contributor.institution | Behaviour Change in Health and Business | |
dc.contributor.institution | Centre for Health Services and Clinical Research | |
dc.contributor.institution | Centre for Research in Psychology and Sports | |
dc.contributor.institution | Health and Clinical Psychology Research Group | |
dc.contributor.institution | Psychology | |
dc.contributor.institution | Department of Clinical, Pharmaceutical and Biological Science | |
dc.contributor.institution | Basic and Clinical Science Unit | |
dc.description.status | Peer reviewed | |
rioxxterms.versionofrecord | 10.1111/jorc.12480 | |
rioxxterms.type | Other | |
herts.preservation.rarelyaccessed | true | |