dc.contributor.author | Mayrhofer, Andrea | |
dc.contributor.author | Mathie, Elspeth | |
dc.contributor.author | McKeown, Jane | |
dc.contributor.author | Goodman, Claire | |
dc.contributor.author | Irvine, Lisa | |
dc.contributor.author | Hall, Natalie | |
dc.contributor.author | Walker , Mike | |
dc.date.accessioned | 2018-09-11T00:12:01Z | |
dc.date.available | 2018-09-11T00:12:01Z | |
dc.date.issued | 2020-05-01 | |
dc.identifier.citation | Mayrhofer , A , Mathie , E , McKeown , J , Goodman , C , Irvine , L , Hall , N & Walker , M 2020 , ' Young onset dementia: Public involvement in co-designing community-based support ' , Dementia: International Journal of Social Research and Practice , vol. 19 , no. 4 , pp. 1051-1066 . https://doi.org/10.1177/1471301218793463 | |
dc.identifier.issn | 1471-3012 | |
dc.identifier.other | ORCID: /0000-0003-1936-3584/work/76728539 | |
dc.identifier.other | ORCID: /0000-0002-3635-7699/work/100872286 | |
dc.identifier.other | ORCID: /0000-0002-8938-4893/work/62749735 | |
dc.identifier.other | ORCID: /0000-0002-5871-436X/work/157529543 | |
dc.identifier.uri | http://hdl.handle.net/2299/20544 | |
dc.description | © The Author(s) 2018. This article is distributed under the terms of the Creative Commons Attribution 4.0 License (http://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). | |
dc.description.abstract | Whilst the support requirements of people diagnosed with young onset dementia are well-documented, less is known about what needs to be in place to provide age-appropriate care. To understand priorities for service planning and commissioning and to inform the design of a future study of community-based service delivery models, we held two rounds of discussions with four groups of people affected by young onset dementia (n = 31) and interviewed memory services (n = 3) and non-profit service providers (n = 7) in two sites in England. Discussions confirmed published evidence on support requirements, but also reframed priorities for support and suggested new approaches to dementia care at the community level. This paper argues that involving people with young onset dementia in the assessment of research findings in terms of what is important to them, and inviting suggestions for solutions, provides a way for co-designing services that address the challenges of accessing support for people affected by young onset dementia. | en |
dc.format.extent | 16 | |
dc.format.extent | 627117 | |
dc.language.iso | eng | |
dc.relation.ispartof | Dementia: International Journal of Social Research and Practice | |
dc.subject | Age-appropriate dementia care | |
dc.subject | co-production | |
dc.subject | continuity | |
dc.subject | young onset dementia | |
dc.subject | Sociology and Political Science | |
dc.subject | General Social Sciences | |
dc.title | Young onset dementia: Public involvement in co-designing community-based support | en |
dc.contributor.institution | Centre for Research in Public Health and Community Care | |
dc.contributor.institution | Older People's Health and Complex Conditions | |
dc.contributor.institution | School of Health and Social Work | |
dc.contributor.institution | Patient Experience and Public Involvement | |
dc.contributor.institution | Nursing, Midwifery and Social Work | |
dc.contributor.institution | School of Life and Medical Sciences | |
dc.contributor.institution | Centre for Health Services and Clinical Research | |
dc.contributor.institution | Health Research Methods Unit | |
dc.contributor.institution | Research Unit in Sport, Physical Activity and Ageing | |
dc.contributor.institution | Department of Psychology, Sport and Geography | |
dc.contributor.institution | Centre for Future Societies Research | |
dc.contributor.institution | Sport and Social Inclusion Research Group | |
dc.description.status | Peer reviewed | |
dc.identifier.url | http://www.scopus.com/inward/record.url?scp=85052586455&partnerID=8YFLogxK | |
rioxxterms.versionofrecord | 10.1177/1471301218793463 | |
rioxxterms.type | Journal Article/Review | |
herts.preservation.rarelyaccessed | true | |