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Browsing by Author "Durand, Marie-Anne"
Now showing items 21-33 of 33
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Self-management interventions for epilepsy in people with intellectual disabilities: A Scoping Review
Dannenberg, Michelle; Mengoni, Silvana; Gates, Robert; Durand, Marie-Anne (2016-10-01)Purpose People with intellectual disabilities (ID) experience higher incidences of chronic health conditions, poorer health outcomes, and increased risk of premature death. Epilepsy is 20 times more common in people with ... -
Shared decision making in health care : achieving evidence based patient choice
Elwyn, Glyn; Durand, Marie-Anne (SAGE Publications, 2011) -
"Sometimes, it just stops me from doing anything”: A qualitative exploration of epilepsy management in people with intellectual disabilities and their carers
Mengoni, Silvana; Gates, Robert; Parkes, Georgina; Wellsted, David; Barton, Garry; Ring, Howard; Khoo, Mary Ellen; Monji-Patel, Deela; Friedli, Karin; Zia, Asif; Durand, Marie-Anne (2016-10-11)Epilepsy affects 1 in 5 people with an intellectual disability (ID), but little is known about their experiences of living with epilepsy. A qualitative study was conducted to investigate the impact and management of epilepsy ... -
Stakeholder field-testing of amnioDex, a person-centred decision support intervention for amniocentesis
Durand, Marie-Anne; Boivin, Jacky; Elwyn, Glyn (2012)Objectives: To field-test a patient-targeted Decision Support Intervention (DESI) for amniocentesis (amnioDex) and make progress towards elaborating concrete guidelines for field-testing complex interventions. Methods: ... -
Supporting shared decision making for older people with multiple health and social care needs: a realist synthesis
Bunn, Frances; Goodman, Claire; Russell, Bridget; Wilson, Patricia; Manthorpe, Jill; Rait, Greta; Hodkinson, Isabel; Durand, Marie-Anne (2018-07-18)Background Health care systems are increasingly moving towards more integrated approaches. Shared decision making (SDM) is central to these models but may be complicated by the need to negotiate and communicate decisions ... -
Supporting shared decision making for older people with multiple health and social care needs: a realist synthesis
Bunn, Frances; Goodman, Claire; Russell, Bridget; Wilson, Patricia; Manthorpe , Jill; Durand, Marie-Anne; Rait, Greta (National Institute for Health Research (NIHR), 2018-08-22)Background: Health care systems are increasingly moving towards more integrated approaches. Shared decision making (SDM) is central to these models but may be complicated by the need to negotiate and communicate decisions ... -
“...their opinions mean something”: care staff’s attitudes to health research involving people with intellectual disabilities.
Hall, Natalie; Durand, Marie-Anne; Mengoni, Silvana (2017-06-19)Background Despite experiencing health inequalities, people with intellectual disabilities are under-represented in health research. Previous research has identified barriers but has typically focused on under-recruitment ... -
Toward Minimum Standards for Certifying Patient Decision Aids : A Modified Delphi Consensus Process
Joseph-Williams, N.; Newcombe, R.; Politi, M.; Durand, Marie-Anne; Sivell, S.; Stacey, D.; O'Connor, A.; Volk, R.J.; Edwards, A.; Bennett, C.; Pignone, M.; Thomson, R.; Elwyn, Glyn (2014-08)Objective. The IPDAS Collaboration has developed a checklist and an instrument (IPDASi v3.0) to assess the quality of patient decision aids (PDAs) in terms of their development process and shared decision-making design ... -
What are the challenges and facilitators to conducting research with people with intellectual disabilities? The perspectives of care staff
Mengoni, Silvana; Hall, Natalie; Durand, Marie-Anne (Wiley, 2016-07-22) -
Where is the theory? : Evaluating the theoretical frameworks described in decision support technologies
Durand, Marie-Anne; Stiel, Mareike; Boivin, Jacky; Elwyn, Glyn (2008)To identify and describe the extent to which theory or theoretical frameworks informed the development and evaluation of decision support technologies (DSTs). -
Wordless intervention for epilepsy in learning disabilities (WIELD) : study protocol for a randomized controlled feasibility trial
Durand, Marie-Anne; Gates, Robert; Parkes, Georgina; Zia, Asif; Friedli, Karin; Barton, Garry; Ring, Howard; Oostendorp, Linda; Wellsted, D. (2014-11-20)Epilepsy is the most common neurological problem that affects people with learning disabilities. The high seizure frequency, resistance to treatments, associated skills deficit and co-morbidities make the management of ... -
A wordless intervention for people with epilepsy and intellectual disabilities (WIELD): A randomized controlled feasibility trial
Mengoni, Silvana; Durand, Marie-Anne; Parkes, Georgina; Barton, Garry; Friedli, Karin; Ring, Howard; Wellsted, David; Zia, Asif; Gates, Robert (Wiley, 2016-07-22) -
Wordless intervention for people with epilepsy and learning disabilities (WIELD): A randomised controlled feasibility trial
Mengoni, Silvana; Gates, Robert; Parkes, Georgina; Wellsted, David; Barton, Garry; Ring, Howard; Khoo, Mary Ellen; Monji-Patel, Deela; Friedli, Karin; Zia, Asif; Durand, Marie-Anne (2016-11-10)Objective To investigate the feasibility of a full-scale randomised controlled trial of a picture booklet to improve quality of life for people with epilepsy and learning disabilities. Trial design A randomised controlled ...