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Adherence to prophylaxis in adolescents and young adults with severe haemophilia, A qualitative study with patients
Van Os, Sandra; Ryder, Nuala; Hart, Daniel; Troop, Nicholas (2018-09-24)Abstract Introduction: Reported levels of adherence to prophylaxis among young people with haemophilia (YPH) vary widely and are predominately based on estimations made by healthcare professionals and parents. Reasons for ... -
Adherence to prophylaxis in adolescents and young adults with severe haemophilia: a qualitative study with healthcare professionals
Van-Os, Sandra; Ryder, Nuala; Hart, Daniel; Troop, Nicholas (2020-01-28)Aim: to examine healthcare professionals’ (HP) perceptions and experiences in relation to adherence to prophylactic treatment among young people living with haemophilia (YPH). Methods: All HPs in four haemophilia centres ... -
Adherence to prophylaxis in adolescents and young adults with severe haemophilia: A quantitative study with patients
Van Os, Sandra; Troop, Nicholas; Sullivan, Keith; Hart, Daniel (2017-01-19)Introduction: haemophilia is an inherited bleeding disorder caused by a deficiency in one of the blood coagulation factors. For people affected by severe haemophilia, the deficiency can cause spontaneous internal bleeding. ...