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Browsing by Author "Wythe, Helena"
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Evaluating the usefulness of a wordless picture book for adults with intellectual disabilities about the COVID ‐19 vaccination programme using co‐production: The CAREVIS study
Wythe, Helena; Attavar, Raj; Jones, Julia; Kelly, Jackie; Palmer, Claire; Jenkins, Louise; Dekker, Romanie; Fearns, Debra; Watkins, Scott; Hunt, Anne; Pattison, Natalie (2024-02-01)Aim: To explore the usefulness of a co‐designed wordless book showing processes of receiving COVID‐19 vaccines designed by, and for, adults with intellectual disabilities. Methods: A qualitative evaluation of the resource ... -
Experiences of feeding young children with Down Syndrome: Parents’ and health professionals’ perspectives
Mengoni, Silvana; Smith, Bobbie; Wythe, Helena; Rogers, Samantha (2023-12-06)Background: Children with Down syndrome are commonly reported to experience feeding problems in the early years. This study aimed to explore and synthesise the experiences of feeding young children with Down syndrome from ... -
Guidance for Researchers: Feedback : Patient and Public Involvement (PPI): Feedback from Researchers to PPI Contributors
Mathie, Elspeth; Wythe, Helena; Munday, Diane; Millac, Paul; Rhodes, Graham; Roberts, Nick; Smeeton, Nigel; Poland, Fiona; Jones, Julia (University of Hertfordshire, 2018-03-15) -
Reciprocal Relationships and the Importance of Feedback in Patient and Public Involvement: A Mixed Methods Study
Mathie, Elspeth; Wythe, Helena; Munday, Diane; Millac, Paul; Rhodes, Graham; Roberts, Nick; Smeeton, Nigel; Poland, Fiona; Jones, Julia (2018-10-18)Background: Reciprocal relationships between researchers and patient and public involvement (PPI) contributors can enable successful PPI in research. However, research and anecdotal evidence suggest that researchers do not ... -
Regional working in east of England: co-designing a PPI feedback tool
Mathie, Elspeth; Wythe, Helena; Munday, Diane; Rhodes, Graham; Millac, Paul; Rhodes, Nick; Simpson, Jean; Barden, Nat; Vicary, Penny; Wellings, Amander; Poland, Fiona; Jones, Julia (2017-11-28)Background The importance of feedback is highlighted in the ‘Values and Principles’[1] from INVOLVE and included in the current Public Involvement consultation on standards [2]. Patient and Public Involvement (PPI) ... -
Regional Working in the East of England: Using the UK National Standards for Public Involvement
Mathie, Elspeth; Wythe, Helena; Munday, Diane; Rhodes, Graham; Vicary, Penny; Millac, Paul; Jones, Julia (2018-12-06)Plain English summary: Involving patients and members of the public to help shape and carry out research is recommended in health research in the United Kingdom (UK). There are a number of regional networks of Patient and ... -
Reporting on patient and public involvement (PPI) in research publications: Using the GRIPP2 checklists with lay co-researchers
Jones, Julia; Cowe, Marion; Marks, Sue; McAllister, Tony; Mendoza, Alex; Ponniah, Carole; Wythe, Helena; Mathie, Elspeth (2021-07-22)Background: Patient and public involvement (PPI) in health and social care research is considered important internationally, with increasing evidence that PPI improves the quality, relevance and outcomes of research. There ... -
RESEARCH DESIGN BOUNDARIES FOR QUALITATIVE RESEARCH, STAKEHOLDER AND PATIENT AND PUBLIC INVOLVEMENT, AND WHY THEY MATTER
Keenan, Julia; Poland, Fiona; Wilson, Patricia; Mathie, Elspeth; Boote, Jonathan; Varley, Anna; Wythe, Helena; Vicary, Penny; Cowe, Marion; Munday, Diane; Howe, Amanda (2017-03-01)Within current mainstream understandings of patient and public involvement (PPI) in health research, a clear distinction is made between what ‘involvement’ in research is: ‘research being carried out ‘with’ or ‘by’ members ... -
The Role of Patient and Public Involvement Leads in Facilitating Feedback: “invisible work”
Mathie, Elspeth; Smeeton, Nigel; Munday, Diane; Rhodes, Graham; Wythe, Helena; Jones, Julia (2020-07-10)Background Health research in the UK requires members patients, those with lived experience and members of the public to be involved in designing and shaping research: many of them have reported that their comments and ... -
‘We’re passengers sailing in the same ship, but we have our own berths to sleep in’: Evaluating patient and public involvement within a regional research programme: An action research project informed by Normalisation Process Theory
Keenan, Julia; Poland, Fiona; Boote, Jonathan; Howe, Amanda; Wythe, Helena; Varley, Anna; Vicary, Penelope; Irvine, Lisa; Wellings, Amander (2019-05-14)Background: Patient and public involvement (PPI) is a requirement for UK health and social care research funding. Evidence for how best to implement PPI in research programmes, such as National Institute for Health Research ...