An exploration of quality of life of adults with haemophilia

Abstract

There has been little discussion in the disability literature regarding the life experiences of individuals with haemophilia. There has, however, been an intense focus on examining the impact of this condition on quality of life (QoL) within the medical profession. The medical interest in the evaluation of QoL is in part due to the considerable costs of the treatment of haemophilia and the need to justify these costs to commissioners and purchasers. As a result, there has been a growing body of research located within the quantitative paradigm and grounded in the medical model that has examined the impact of haemophilia on QoL. There has, however, been a paucity of research located in the qualitative paradigm