Show simple item record

dc.contributor.authorvan der Steen, Jenny T.
dc.contributor.authorGoodman, Claire
dc.date.accessioned2015-03-09T09:03:36Z
dc.date.available2015-03-09T09:03:36Z
dc.date.issued2015-03
dc.identifier.citationvan der Steen , J T & Goodman , C 2015 , ' What research we no longer need in neurodegenerative disease at the end of life : The case of research in dementia ' , Palliative Medicine , vol. 29 , no. 3 , pp. 189–192 . https://doi.org/10.1177/0269216315569998
dc.identifier.issn0269-2163
dc.identifier.otherPURE: 8205768
dc.identifier.otherPURE UUID: 36e44df2-bc34-44a6-a975-3a6e5faba075
dc.identifier.otherScopus: 84923515166
dc.identifier.urihttp://hdl.handle.net/2299/15551
dc.description.abstractA complete silence. That was what we got back from the European experts who had been energetically discussing research priorities in palliative care in neurodegenerative disease (ND) until a short while ago.1 The chair, an entertaining professor with good manners, must have felt the unease and quickly refocused the group to their task. But, wasn’t this the best question of all day? What research we no longer need? As scientists able to consider different perspectives, shouldn’t we have some idea of what research is, by contrast, no longer necessary? Palliative care research and research with people who have ND and are at the end of their life is, by definition, difficult. Making choices is a sensitive issue, but funds are limited. Therefore, we take a counterpoint to the research agenda recently reported by European Union (EU) Joint Programme – Neurodegenerative Disease Research (JPND),1 and consider whether there are studies we no longer need or are low priority, taking the example of dementiaen
dc.language.isoeng
dc.relation.ispartofPalliative Medicine
dc.rightsOpen
dc.titleWhat research we no longer need in neurodegenerative disease at the end of life : The case of research in dementiaen
dc.contributor.institutionDepartment of Adult Nursing and Primary Care
dc.contributor.institutionHealth & Human Sciences Research Institute
dc.contributor.institutionSchool of Health and Social Work
dc.contributor.institutionCentre for Research in Public Health and Community Care
dc.contributor.institutionOlder People's Health and Complex Conditions
dc.description.statusPeer reviewed
dc.relation.schoolSchool of Health and Social Work
dc.description.versiontypeFinal Accepted Version
dcterms.dateAccepted2015-03
rioxxterms.versionAM
rioxxterms.versionAM
rioxxterms.versionofrecordhttps://doi.org/10.1177/0269216315569998
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue
herts.rights.accesstypeOpen


Files in this item

Thumbnail
Thumbnail

This item appears in the following Collection(s)

Show simple item record