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dc.contributor.authorBoote, Jonathan
dc.contributor.authorBaird, Wendy
dc.contributor.authorBeecroft, Claire
dc.date.accessioned2015-03-09T12:48:36Z
dc.date.available2015-03-09T12:48:36Z
dc.date.issued2010-04-01
dc.identifier.citationBoote , J , Baird , W & Beecroft , C 2010 , ' Public involvement at the design stage of primary health research : A narrative review of case examples ' , Health Policy , vol. 95 , no. 1 , pp. 10-23 . https://doi.org/10.1016/j.healthpol.2009.11.007
dc.identifier.issn0168-8510
dc.identifier.urihttp://hdl.handle.net/2299/15567
dc.description.abstractObjective: To review published examples of public involvement in research design, to synthesise the contributions made by members of the public, as well as the identified barriers, tensions and facilitating strategies. Design: Systematic literature search and narrative review. Findings: Seven papers were identified covering the following topics: breast-feeding, antiretroviral and nutrition interventions; paediatric resuscitation; exercise and cognitive behavioural therapy; hormone replacement therapy and breast cancer; stroke; and parents' experiences of having a pre-term baby. Six papers reported public involvement in the development of a clinical trial, while one reported public involvement in the development of a mixed methods study. Group meetings were the most common method of public involvement. Contributions that members of the public made to research design were: review of consent procedures and patient information sheets; outcome suggestions; review of acceptability of data collection procedures; and recommendations on the timing of potential participants into the study and the timing of follow-up. Numerous barriers, tensions and facilitating strategies were identified. Conclusions: The issues raised here should assist researchers in developing research proposals with members of the public. Substantive and methodological directions for further research on the impact of public involvement in research design are set out.en
dc.format.extent14
dc.language.isoeng
dc.relation.ispartofHealth Policy
dc.subjectHealth research design
dc.subjectLiterature review
dc.subjectPublic involvement
dc.subjectHealth Policy
dc.titlePublic involvement at the design stage of primary health research : A narrative review of case examplesen
dc.contributor.institutionSchool of Health and Social Work
dc.contributor.institutionHealth & Human Sciences Research Institute
dc.contributor.institutionCentre for Research in Public Health and Community Care
dc.contributor.institutionDepartment of Adult Nursing and Primary Care
dc.description.statusPeer reviewed
rioxxterms.versionofrecord10.1016/j.healthpol.2009.11.007
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue


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