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        Critical perspectives on 'consumer involvement' in health research : Epistemological dissonance and the know-do gap

        Author
        Ward, Paul R.
        Thompson, Jill
        Barber, Rosemary
        Armitage, Christopher J.
        Boote, Jonathan
        Cooper, Cindy L.
        Jones, Georgina L.
        Attention
        2299/15568
        Abstract
        Researchers in the area of health and social care (both in Australia and internationally) are encouraged to involve consumers throughout the research process, often on ethical, political and methodological grounds, or simply as 'good practice'. This article presents findings from a qualitative study in the UK of researchers' experiences and views of consumer involvement in health research. Two main themes are presented. First, we explore the 'know-do gap' which relates to the tensions between researchers' perceptions of the potential benefits of, and their actual practices in relation to, consumer involvement. Second, we focus on one of the reasons for this 'know-do gap', namely epistemological dissonance. Findings are linked to issues around consumerism in research, lay/professional knowledges, the (re)production of professional and consumer identities and the maintenance of boundaries between consumers and researchers.
        Publication date
        2010-03-01
        Published in
        Journal of Sociology
        Published version
        https://doi.org/10.1177/1440783309351771
        Other links
        http://hdl.handle.net/2299/15568
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