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dc.contributor.authorWilkinson, Emma K.
dc.contributor.authorRandhawa, Gurch
dc.contributor.authorBrown, Edwina Anne
dc.contributor.authorDa Silva Gane, Maria
dc.contributor.authorStoves, John
dc.contributor.authorWarwick, Graham L.
dc.contributor.authorAkhtar, Tahira
dc.contributor.authorMagee, Regina
dc.contributor.authorSharman, Sue
dc.contributor.authorFarrington, Ken
dc.date.accessioned2015-04-15T10:33:59Z
dc.date.available2015-04-15T10:33:59Z
dc.date.issued2014-09
dc.identifier.citationWilkinson , E K , Randhawa , G , Brown , E A , Da Silva Gane , M , Stoves , J , Warwick , G L , Akhtar , T , Magee , R , Sharman , S & Farrington , K 2014 , ' Communication as care at end of life : An emerging issue from an exploratory action research study of renal end-of-life care for ethnic minorities in the UK ' , Journal of Renal Care , vol. 40 , no. SUPP.1 , pp. 23-29 . https://doi.org/10.1111/jorc.12084
dc.identifier.issn1755-6678
dc.identifier.otherPURE: 8390691
dc.identifier.otherPURE UUID: 9597649a-423d-4fd6-8660-46d03197cc52
dc.identifier.otherScopus: 84906838478
dc.identifier.urihttp://hdl.handle.net/2299/15777
dc.description.abstractSouth Asian people have a higher risk of developing kidney disease, are disproportionately represented in the patient population requiring renal replacement therapy and wait longer to receive a kidney transplant, compared with white Europeans. As a result, there is a demand for end-of-life care, which meets the needs of this group of patients. Providing end-of-life care to patients from different cultures is a challenge for renal services as there can be barriers to communication in the form of language, delegated decision-making within families and reluctance to discuss death. To explore end-of-life care for South Asians with kidney disease, 16 interviews with patients and 14 focus groups with care providers were conducted at four research sites in the UK with large South Asian populations. Using an action research design the data were analysed thematically and fed back to inform the research in a cyclical manner. If patients are not fully aware of their condition or of what end-of-life care is, it is less likely that they will be able to be involved in decision-making about their care and this is compounded where there are communication barriers. Variations in care provider awareness and experience of providing end-of-life care to South Asian patients, in turn, contributes to lack of patient awareness of end-of-life care. Communication as care at the end of life should be explored further. Researching the South Asian patient experience of end of life highlights many relevant and generalisable issues.en
dc.format.extent7
dc.language.isoeng
dc.relation.ispartofJournal of Renal Care
dc.subjectCommunication
dc.subjectEnd-of-life care
dc.subjectPatient experience
dc.subjectSouth asian
dc.titleCommunication as care at end of life : An emerging issue from an exploratory action research study of renal end-of-life care for ethnic minorities in the UKen
dc.contributor.institutionSchool of Life and Medical Sciences
dc.contributor.institutionCentre for Postgraduate Medicine
dc.contributor.institutionHealth & Human Sciences Research Institute
dc.contributor.institutionPostgraduate Medicine
dc.contributor.institutionHealth Services and Medicine
dc.contributor.institutionPharmacology and Clinical Science Research
dc.description.statusPeer reviewed
rioxxterms.versionofrecordhttps://doi.org/10.1111/jorc.12084
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue


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