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dc.contributor.authorGoodman, Claire
dc.contributor.authorFroggatt, Katherine
dc.contributor.authorAmador, Sarah
dc.contributor.authorMathie, Elspeth
dc.contributor.authorMayrhofer, Andrea
dc.date.accessioned2015-10-08T09:17:05Z
dc.date.available2015-10-08T09:17:05Z
dc.date.issued2015-09-17
dc.identifier.citationGoodman , C , Froggatt , K , Amador , S , Mathie , E & Mayrhofer , A 2015 , ' End of life care interventions for people with dementia in care homes : addressing uncertainty within a framework for service delivery and evaluation ' , BMC Palliative Care , vol. 14 , 42 . https://doi.org/10.1186/s12904-015-0040-0
dc.identifier.issn1472-684X
dc.identifier.otherPURE: 9199269
dc.identifier.otherPURE UUID: bf0a35b0-4e20-481b-947b-277021fc5c2a
dc.identifier.otherScopus: 84941772146
dc.identifier.urihttp://hdl.handle.net/2299/16504
dc.description© 2015 Goodman et al. Open Access. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated
dc.description.abstractMethods: The data from three studies on EoL care in care homes: (i) EVIDEM EoL , (ii) EPOCH , and (iii) TTT EoL were used to inform the development of the framework. All used mixed method designs and two had an intervention designed to improve how care home staff provided end of life care. The EVIDEM EoL and EPOCH studies tracked the care of older people in care homes over a period of 12 months. The TTT study collected resource use data of care home residents for three months, and surveyed decedents' notes for ten months, Results: Across the three studies, 29 care homes, 528 residents, 205 care home staff, and 44 visiting health care professionals participated. Analysis of showed that end of life interventions for people with dementia were characterised by uncertainty in three key areas; what treatment is the 'right' treatment, who should do what and when, and in which setting EoL care should be delivered and by whom? These uncertainties are conceptualised as Treatment uncertainty, Relational uncertainty and Service uncertainty. This paper proposes an emergent framework to inform the development and evaluation of EoL care interventions in care homes. Conclusion: For people with dementia living and dying in care homes, EoL interventions need to provide strategies that can accommodate or "hold" the inevitable and often unresolvable uncertainties of providing and receiving care in these settingsen
dc.format.extent9
dc.language.isoeng
dc.relation.ispartofBMC Palliative Care
dc.subjectUncertainty; Dementia; End of life; Care Homes; Evaluation framework; Care Homes; Terminal Care; Method
dc.titleEnd of life care interventions for people with dementia in care homes : addressing uncertainty within a framework for service delivery and evaluationen
dc.contributor.institutionSchool of Health and Social Work
dc.contributor.institutionHealth & Human Sciences Research Institute
dc.contributor.institutionCentre for Research in Public Health and Community Care
dc.contributor.institutionOlder People's Health and Complex Conditions
dc.contributor.institutionDepartment of Adult Nursing and Primary Care
dc.contributor.institutionNursing, Midwifery and Social Work
dc.contributor.institutionPatient Experience and Public Involvement
dc.description.statusPeer reviewed
rioxxterms.versionVoR
rioxxterms.versionofrecordhttps://doi.org/10.1186/s12904-015-0040-0
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue


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