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dc.contributor.authorAlexakis, Christopher
dc.contributor.authorNash, Avril
dc.contributor.authorLloyd, Michele
dc.contributor.authorBrooks, F.
dc.contributor.authorLindsay, James O.
dc.contributor.authorPoullis, Andrew
dc.date.accessioned2015-10-08T11:32:02Z
dc.date.available2015-10-08T11:32:02Z
dc.date.issued2015-10-02
dc.identifier.citationAlexakis , C , Nash , A , Lloyd , M , Brooks , F , Lindsay , J O & Poullis , A 2015 , ' Inflammatory bowel disease in young patients : challenges faced by black and minority ethnic communities in the UK ' , Health and Social Care in the Community , vol. 23 , no. 6 , pp. 665-672 . https://doi.org/10.1111/hsc.12188
dc.identifier.issn0966-0410
dc.identifier.otherPURE: 8136906
dc.identifier.otherPURE UUID: a6e9a6dd-010f-423b-80a6-2b73ce80bbaf
dc.identifier.otherScopus: 84942844986
dc.identifier.urihttp://hdl.handle.net/2299/16508
dc.descriptionThis document is the peer reviewed version of the following article: Christopher Alexakis, Avril Nash, Michele Lloyd, Fiona Brooks, James O. Lindsay, and Andrew Poullis, ‘Inflammatory bowel disease in young patients: challenges faced by blank and minority ethnic communities in the UK’, Health and Social Care in the Community, Vol. 23 (6): 665-672, first published 9 February 2015, which has been published in final form at doi: 10.1111/hsc.12188. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
dc.description.abstractThere is strong evidence indicating that inflammatory bowel disease (IBD) is increasing among black and minority ethnic (BME) communities. Despite this rise in prevalence, there is a paucity of research relating to ethnicity and IBD outside the USA. Furthermore, the symptoms of IBD are reported to start during childhood or adolescence in 20–25% of people with the condition. It is therefore important that young people's experiences of diagnosis, treatment and living with IBD are fully understood to ensure effective services and information provision. The study reported on in this paper was commissioned by a UK charity (Crohn's and Colitis UK) with the aim of increasing understanding of the specific issues and service needs of young people with IBD from BME communities. Empirical research entailed in-depth semi-structured interviews with 20 young people from BME groups accessed through gastroenterology departments at three collaborating NHS hospitals in England serving ethnically diverse populations. Interviews were carried out from June to December 2010 and sought to capture young people's views with IBD. A thematic analysis of their experiences identified many commonalities with other young people with IBD, such as the problematic route to formal diagnosis and the impact of IBD on education. The young people also experienced tensions between effective self-management strategies and cultural norms and practices relating to food. Moreover, the ability of parents to provide support was hampered for some young people by the absence of culturally competent services that were responsive to the families’ communication needs. The findings highlight the need for more culturally appropriate information concerning IBD, and improved responsiveness to young people with IBD within primary care and the education system, as well as culturally competent messaging relating to the specific nature of the condition among the wider South Asian and black communitiesen
dc.format.extent8
dc.language.isoeng
dc.relation.ispartofHealth and Social Care in the Community
dc.rightsEmbargoed
dc.subjectethnicity
dc.subjectinflammatory bowel disease
dc.subjectminority background
dc.subjectyoung people
dc.titleInflammatory bowel disease in young patients : challenges faced by black and minority ethnic communities in the UKen
dc.contributor.institutionDepartment of Adult Nursing and Primary Care
dc.contributor.institutionCentre for Research in Public Health and Community Care
dc.contributor.institutionNursing, Midwifery and Social Work
dc.contributor.institutionOlder People's Health and Complex Conditions
dc.contributor.institutionHealth, Young People and Family Lives
dc.contributor.institutionSchool of Health and Social Work
dc.contributor.institutionHealth & Human Sciences Research Institute
dc.contributor.institutionWeight and Obesity Research Group
dc.description.statusPeer reviewed
dc.date.embargoedUntil2016-02-09
dc.relation.schoolSchool of Health and Social Work
dc.description.versiontypeFinal Accepted Version
dcterms.dateAccepted2015-10-02
rioxxterms.versionAM
rioxxterms.versionofrecordhttps://doi.org/10.1111/hsc.12188
rioxxterms.licenseref.startdate2016-02-09
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue
herts.date.embargo2016-02-09
herts.rights.accesstypeEmbargoed


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