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dc.contributor.authorDannenberg, Michelle
dc.contributor.authorMengoni, Silvana
dc.contributor.authorGates, Robert
dc.contributor.authorDurand, Marie-Anne
dc.date.accessioned2016-10-10T09:13:33Z
dc.date.available2016-10-10T09:13:33Z
dc.date.issued2016-10-01
dc.identifier.citationDannenberg , M , Mengoni , S , Gates , R & Durand , M-A 2016 , ' Self-management interventions for epilepsy in people with intellectual disabilities: A Scoping Review ' , Seizure , vol. 41 , pp. 16-25 . https://doi.org/10.1016/j.seizure.2016.06.022
dc.identifier.otherPURE: 10176410
dc.identifier.otherPURE UUID: 5f41d982-9128-4011-8cfe-2c6927d0d4c3
dc.identifier.otherScopus: 84978488716
dc.identifier.urihttp://hdl.handle.net/2299/17263
dc.descriptionThis document is the Accepted Manuscript of an article accepted for publication in SEIZURE: European Journal of Epilepsy (2016), , http://dx.doi.org/10.1016/j.seizure.2016.06.022.
dc.description.abstractPurpose People with intellectual disabilities (ID) experience higher incidences of chronic health conditions, poorer health outcomes, and increased risk of premature death. Epilepsy is 20 times more common in people with ID than in the general population. It tends to be more difficult to diagnose, more severe, and more difficult to treat. Improving epilepsy self-management in this group is advocated in guidelines for best practice. However, few self-management interventions exist, and a robust examination of their effectiveness is missing. Our aim was to identify existing self-management interventions for epilepsy in people with ID and to analyze their impact. Methods A scoping review using Arksey and O’Malley's framework was conducted. Medline, EMBASE, CINAHL, PsycInfo, OpenSIGLE, the Cochrane Database of Systematic Reviews, and Web of Science were searched from inception until June 2015. Using a piloted charting tool, selected articles were thematically analyzed. Results An initial search identified 570 articles, of which five met the inclusion criteria. Pilot and randomized controlled feasibility study findings suggest that self-management interventions targeted at people with ID are acceptable to this population, improve epilepsy-related knowledge, improve seizure frequency, and show potential to improve quality of life. A randomised controlled trial of a self-management intervention is currently underway. Conclusion Studies evaluating self-management interventions for people with epilepsy and ID are sparse. Our findings demonstrate the potential for self-management interventions to improve outcomes in this population. Controlled studies with comparable measures and longer follow-ups are needed to rigorously assess the impact of self-management interventions on this patient population.en
dc.language.isoeng
dc.relation.ispartofSeizure
dc.subjectscoping review
dc.subjectepilepsy
dc.subjectintellectual abilities
dc.subjectself-management
dc.subjectintervention
dc.titleSelf-management interventions for epilepsy in people with intellectual disabilities: A Scoping Reviewen
dc.contributor.institutionCentre for Lifespan and Chronic Illness Research
dc.contributor.institutionSchool of Life and Medical Sciences
dc.contributor.institutionDepartment of Psychology and Sports Sciences
dc.contributor.institutionPsychology
dc.contributor.institutionHealth and Clinical Psychology Research Group
dc.contributor.institutionHealth & Human Sciences Research Institute
dc.contributor.institutionSchool of Health and Social Work
dc.contributor.institutionSocial Work, Mental Health and Learning Disabilities
dc.contributor.institutionBasic and Clinical Science Unit
dc.contributor.institutionCentre for Health Services and Clinical Research
dc.contributor.institutionHealth Research Methods Unit
dc.description.statusPeer reviewed
rioxxterms.versionAM
rioxxterms.versionofrecordhttps://doi.org/10.1016/j.seizure.2016.06.022
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue


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