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dc.contributor.authorMadden, Angela
dc.contributor.authorRiordan, Alexandra
dc.contributor.authorKnowles, Linda
dc.date.accessioned2017-01-18T17:26:43Z
dc.date.available2017-01-18T17:26:43Z
dc.date.issued2016-10-01
dc.identifier.citationMadden , A , Riordan , A & Knowles , L 2016 , ' Outcomes in coeliac disease: a qualitative exploration of patients’ views on what they want to achieve when seeing a dietitian ' , Journal of Human Nutrition and Dietetics , vol. 29 , no. 5 , pp. 607-616 . https://doi.org/10.1111/jhn.12378
dc.identifier.issn0952-3871
dc.identifier.otherPURE: 9948100
dc.identifier.otherPURE UUID: 414e9d43-f79a-44af-a5b3-e94edb6058e1
dc.identifier.otherScopus: 84991208127
dc.identifier.urihttp://hdl.handle.net/2299/17532
dc.descriptionThis is the peer-reviewed version of the following article: A. M. Madden, A. M. Riordan & L. Knowles, ‘Outcomes in coeliac disease: a qualitative exploration of patients’ views on what they want to achieve when seeing a dietitian’, Journal of Human Nutrition and Dietetics, Vol 29(5): 607-616, May 2016, which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/jhn.12378/epdf This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
dc.description.abstractBackground Coeliac disease (CD) is managed by life-long adherence to a gluten-free diet and dietitians have the potential to facilitate this. Patient involvement through shared decision-making is central to behaviour-change skills used by dietitians but there is little evidence supporting its inclusion in evaluating dietetic interventions. The aim of this study was to explore patients’ preferences for diet and nutrition-related outcomes in CD. Methods Adults with CD or adult carers of children with CD were invited through support networks. Participants took part in a telephone, face-to-face interview or focus group which was audio-recorded and transcribed. Themes were developed using a framework method. Ethical approval was obtained. Results Twenty-nine adult patients and five parents of CD children participated 0-34 years after diagnosis. Four main outcome-related themes emerged: (1) Participants wanted information specific to their lifestyle and time since diagnosis, focussing on food containing gluten, practical issues, prescribable items and general nutrition. (2) The degree of satisfaction with the consultation process impacted on participants’ experience, including the dietitian’s CD expertise, consistency of dietitian seen and the frequency and length of appointments. (3) Health concerns were important to participants and focussed on risk of osteoporosis, unwanted weight gain and the fat and sugar content of manufactured gluten-free products. (4) Clinical monitoring including bone scans and antibody measurements, were mentioned but were not described as being of importance for most participants. Conclusion The outcomes preferred by CD patients and carers focussed primarily on information and resources received and satisfaction with their dietetic consultation.en
dc.format.extent10
dc.language.isoeng
dc.relation.ispartofJournal of Human Nutrition and Dietetics
dc.subjectcoeliac disease
dc.subjectgluten-free
dc.subjectoutcome measures
dc.titleOutcomes in coeliac disease: a qualitative exploration of patients’ views on what they want to achieve when seeing a dietitianen
dc.contributor.institutionSchool of Life and Medical Sciences
dc.contributor.institutionAllied Health Professions
dc.contributor.institutionNutrition and Dietetics
dc.contributor.institutionDepartment of Biological and Environmental Sciences
dc.contributor.institutionWeight and Obesity Research Group
dc.contributor.institutionBiosciences Research Group
dc.contributor.institutionAgriculture, Food and Veterinary Sciences
dc.description.statusPeer reviewed
dc.date.embargoedUntil2017-05-17
dc.identifier.urlhttp://onlinelibrary.wiley.com/doi/10.1111/jhn.12378/epdf
rioxxterms.versionAM
rioxxterms.versionofrecordhttps://doi.org/10.1111/jhn.12378
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue


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