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dc.contributor.authorPopejoy, E.
dc.contributor.authorPollock, Kristian
dc.contributor.authorAlmack, K.
dc.contributor.authorManning, J. C.
dc.contributor.authorJohnston, B.
dc.date.accessioned2018-02-08T17:58:37Z
dc.date.available2018-02-08T17:58:37Z
dc.date.issued2017-08-07
dc.identifier.citationPopejoy , E , Pollock , K , Almack , K , Manning , J C & Johnston , B 2017 , ' Decision-making and future planning for children with life-limiting conditions : A qualitative systematic review and thematic synthesis ' Child: Care, Health and Development , vol. 43 , no. 5 , pp. 627-644 . https://doi.org/10.1111/cch.12461
dc.identifier.issn0305-1862
dc.identifier.otherPURE: 11823810
dc.identifier.otherPURE UUID: 7db5e577-fdc4-4382-9384-53569751208a
dc.identifier.otherScopus: 85017636511
dc.identifier.urihttp://hdl.handle.net/2299/19751
dc.descriptionThis is the peer reviewed version of the following article: E. Popejoy, K. Pollock, K. Almack, J. C. Manning, and B. Johnston, ‘Decision-making and future planning for children with life-limiting conditions: a qualitative systematic review and thematic synthesis’, Child: care, health and development, Vol. 43 (5): 627-644, September 2017, which has been published in final form at https://doi.org/10.1111/cch.12461. Under embargo until 12 April 2018. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
dc.description.abstractBackground: In the last decade, the number of children with life-limiting and life-threatening conditions in England has almost doubled, and it is estimated that worldwide, there are 1.2 million children with palliative care needs. Families and professionals caring for children with life-limiting conditions are likely to face a number of difficult treatment decisions and develop plans for future care over the course of the child's life, but little is known about the process by which these decisions and plans are made. Methods: The purpose of this review is to synthesize findings from qualitative research that has investigated decision-making and future planning for children with life-limiting conditions. A systematic search of six online databases was conducted and identified 887 papers for review; five papers were selected for inclusion, using predefined criteria. Reference list searching and contacting authors identified a further four papers for inclusion. Results: Results sections of the papers were coded and synthesized into themes. Nineteen descriptive themes were identified, and these were further synthesized into four analytical themes. Analytical themes were 'decision factors', 'family factors', 'relational factors' and 'system factors'. Conclusions: Review findings indicate that decision-making and future planning is difficult and needs to be individualized for each family. However, deficits in understanding the dynamic, relational and contextual aspects of decision-making remain and require further research.en
dc.language.isoeng
dc.relation.ispartofChild: Care, Health and Development
dc.rights/dk/atira/pure/core/openaccesspermission/embargoed
dc.subjectDecision-making
dc.subjectLife-limiting illness
dc.subjectSystematic review
dc.subjectPediatrics, Perinatology, and Child Health
dc.subjectDevelopmental and Educational Psychology
dc.subjectPublic Health, Environmental and Occupational Health
dc.titleDecision-making and future planning for children with life-limiting conditions : A qualitative systematic review and thematic synthesisen
dc.contributor.institutionSchool of Health and Social Work
dc.description.statusPeer reviewed
dc.date.embargoedUntil2018-04-12
dc.identifier.urlhttp://www.scopus.com/inward/record.url?scp=85017636511&partnerID=8YFLogxK
dc.identifier.urlhttp://eprints.nottingham.ac.uk/42454/
dc.relation.schoolSchool of Health and Social Work
dc.description.versiontypeFinal Accepted Version
dcterms.dateAccepted2017-03-13
rioxxterms.versionAM
rioxxterms.versionofrecordhttps://doi.org/10.1111/cch.12461
rioxxterms.licenseref.startdate2018-04-12+01:00
rioxxterms.typeOther
herts.preservation.rarelyaccessedtrue
herts.date.embargo2018-04-12+01:00
herts.rights.accesstypeopenAccess


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