Show simple item record

dc.contributor.authorWilson, Patricia
dc.contributor.authorMathie, Elspeth
dc.contributor.authorPoland, Fiona
dc.contributor.authorKeenan, Julia
dc.contributor.authorHowe, Amanda
dc.contributor.authorMunday, Diane
dc.contributor.authorKendall, Sally
dc.contributor.authorCowe, Marion
dc.contributor.authorStaniszewska, Sophie
dc.contributor.authorGoodman, Claire
dc.date.accessioned2018-05-25T14:04:47Z
dc.date.available2018-05-25T14:04:47Z
dc.date.issued2018-04-13
dc.identifier.citationWilson , P , Mathie , E , Poland , F , Keenan , J , Howe , A , Munday , D , Kendall , S , Cowe , M , Staniszewska , S & Goodman , C 2018 , ' How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation ' , Journal of Health Services Research and Policy , vol. 23 , no. 2 , pp. 98-106 . https://doi.org/10.1177/1355819617750688
dc.identifier.issn1355-8196
dc.identifier.otherPURE: 12888732
dc.identifier.otherPURE UUID: 3965b836-8454-48c8-adf2-fef618f91175
dc.identifier.otherScopus: 85056143483
dc.identifier.urihttp://hdl.handle.net/2299/20088
dc.descriptionThis article is distributed under the terms of the Creative Commons Attribution 4.0 License (http://www.creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). Disclaimers This paper presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health.
dc.description.abstractObjectives: To explore how embedded patient and public involvement is within mainstream health research following two decades of policy-driven work to underpin health research with patient and public involvement in England. Methods: Realist evaluation using Normalization Process Theory as a programme theory to understand what enabled patient and public involvement to be embedded as normal practice. Data were collected through a national scoping and survey, and qualitative methods to track patient and public involvement processes and impact over time within 22 nationally funded research projects. Results: In research studies that were able to create reciprocal working relationships and to embed patient and public involvement this was contingent on: the purpose of patient and public involvement being clear; public contributors reflecting research end-beneficiaries; researchers understanding the value of patient and public involvement; patient and public involvement opportunities being provided throughout the research and ongoing evaluation of patient and public involvement. Key contested areas included: whether to measure patient and public involvement impact; seeking public contributors to maintain a balance between being research-aware and an outsider standpoint seen as ‘authentically’ lay; scaling-up patient and public involvement embedded within a research infrastructure rather than risk token presence and whether patient and public involvement can have a place within basic science. Conclusions: While patient and public involvement can be well-integrated within all types of research, policy makers should take account of tensions that must be navigated in balancing moral and methodological imperatives.en
dc.format.extent9
dc.language.isoeng
dc.relation.ispartofJournal of Health Services Research and Policy
dc.subjectHealth research
dc.subjectPatient and public involvement and engagement
dc.subjectRealist evaluation
dc.subjectHealth Policy
dc.subjectPublic Health, Environmental and Occupational Health
dc.titleHow embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluationen
dc.contributor.institutionCentre for Research in Public Health and Community Care
dc.contributor.institutionOlder People's Health and Complex Conditions
dc.contributor.institutionPatient Experience and Public Involvement
dc.contributor.institutionSchool of Health and Social Work
dc.description.statusPeer reviewed
dc.identifier.urlhttp://www.scopus.com/inward/record.url?scp=85056143483&partnerID=8YFLogxK
rioxxterms.versionVoR
rioxxterms.versionofrecordhttps://doi.org/10.1177/1355819617750688
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue


Files in this item

Thumbnail

This item appears in the following Collection(s)

Show simple item record