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        Qualitative Exploration of the Daily Experiences and Challenges Faced by Parents and Caregivers of Children with Tourette's Syndrome.

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        Author
        Ludlow, Amanda
        Brown, Rachel
        Schulz, Joerg
        Attention
        2299/20346
        Abstract
        Few studies address the daily challenges faced by parents of children diagnosed with Tourette’s syndrome. This article reports on a qualitative interview study with 15 parents exploring their experiences, the challenges they face and the support mechanisms they have found to be most helpful. Thematic analysis identified four core categories which represented shared experiences of the participants: coping with children’s challenging behaviours, misconceptions and lack of understanding of professionals and the lay public, negative experiences of their children’s education and lack of support and services for families with Tourette’s syndrome. The findings highlight the challenges of parenting a child with Tourette’s syndrome, particularly with respect to family life and the child’s schooling.
        Publication date
        2016-09-28
        Published in
        Journal of Health Psychology
        Published version
        https://doi.org/10.1177/1359105316669878
        License
        http://creativecommons.org/licenses/by/4.0/
        Other links
        http://hdl.handle.net/2299/20346
        Relations
        School of Life and Medical Sciences
        Metadata
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