dc.contributor.author | Simmonds, Jane | |
dc.contributor.author | Herbland, Anthony | |
dc.contributor.author | Hakim, Alan | |
dc.contributor.author | Ninis, Nelly | |
dc.contributor.author | Lever, William | |
dc.contributor.author | Aziz, Qasim | |
dc.contributor.author | Cairns, Melinda | |
dc.date.accessioned | 2018-08-16T00:11:54Z | |
dc.date.available | 2018-08-16T00:11:54Z | |
dc.date.issued | 2017-11-10 | |
dc.identifier.citation | Simmonds , J , Herbland , A , Hakim , A , Ninis , N , Lever , W , Aziz , Q & Cairns , M 2017 , ' Exercise Beliefs and Behaviours of Individuals with Joint Hypermobility Syndrome/ Ehlers Danlos Syndrome-Hypermobility Type ' , Disability and Rehabilitation . https://doi.org/10.1080/09638288.2017.1398278 | |
dc.identifier.issn | 0963-8288 | |
dc.identifier.other | ORCID: /0000-0002-0736-1090/work/120801349 | |
dc.identifier.uri | http://hdl.handle.net/2299/20369 | |
dc.description | This is an Accepted Manuscript of an article published by Taylor & Francis Group in Disability & Rehabilitation on 10 November 2017, available online at: https://doi.org/10.1080/09638288.2017.1398278. © 2017 Informa UK Limited, trading as Taylor & Francis Group | |
dc.description.abstract | Purpose: To explore exercise beliefs and behaviours of individuals with Joint Hypermobility syndrome/Ehlers–Danlos syndrome – hypermobility type and to explore patient experiences of physiotherapy.Methods: A cross sectional questionnaire survey design was used to collect quantitative and qualitative data from adult members of the Hypermobility Syndromes Association and Ehlers–Danlos Syndrome Support UK. Descriptive and inferential statistics were used to analyse the data. Qualitative data was analysed thematically.Results: 946 questionnaires were returned and analysed. Participants who received exercise advice from a physiotherapist were 1.75 more likely to report high volumes of weekly exercise (odds ratio [OR] = 1.75, 95% confidence interval [CI] = 1.30–2.36, p < 0.001) than those with no advice. Participants who believed that exercise is important for long-term management were 2.76 times more likely to report a high volume of weekly exercise compared to the participants who did not hold this belief (OR = 2.76, 95% CI = 1.38–5.50, p = 0.004). Three themes emerged regarding experience of physiotherapy; physiotherapist as a partner, communication – knowledge, experience and safety.Conclusion: Pain, fatigue and fear are common barriers to exercise. Advice from a physiotherapist and beliefs about the benefits of exercise influenced the reported exercise behaviours of individuals with Ehlers–Danlos syndrome – hypermobility type in this survey. | en |
dc.format.extent | 11 | |
dc.format.extent | 910329 | |
dc.language.iso | eng | |
dc.relation.ispartof | Disability and Rehabilitation | |
dc.subject | joint hypermobility syndrome | |
dc.subject | Ehlers-Danlos syndrome | |
dc.subject | hypermobility type | |
dc.subject | exercise beliefs | |
dc.subject | exercise behaviour | |
dc.subject | physiotherapy | |
dc.title | Exercise Beliefs and Behaviours of Individuals with Joint Hypermobility Syndrome/ Ehlers Danlos Syndrome-Hypermobility Type | en |
dc.contributor.institution | School of Health and Social Work | |
dc.contributor.institution | Allied Health Professions | |
dc.contributor.institution | Physiotherapy | |
dc.contributor.institution | Centre for Applied Clinical, Health and Care Research (CACHE) | |
dc.contributor.institution | Department of Allied Health Professions, Midwifery and Social Work | |
dc.description.status | Peer reviewed | |
dc.date.embargoedUntil | 2018-11-10 | |
rioxxterms.versionofrecord | 10.1080/09638288.2017.1398278 | |
rioxxterms.type | Journal Article/Review | |
herts.preservation.rarelyaccessed | true | |