Dementia Friendly Communities in England: A scoping study

Abstract

ABSTRACT Objectives: To describe the characteristics of Dementia Friendly Communities (DFCs) across England, to inform a national evaluation of their impact on the lives of those affected by dementia. Methods: DFCs in England were identified through online searches and Alzheimer’s Society records. A sub-sample were purposively selected for in-depth study based on online searches and, where necessary, follow-up telephone calls. Data collection and analysis were guided by a pilot evaluation tool for DFCs that addressed how DFCs are organised and resourced, and how their impact is assessed. The evidence was predominantly qualitative, in addition to some descriptive quantitative information. Results: Of the DFCs identified (n=284), most were defined by geographical location (n=251). The remaining ones (n=33) were Communities of Interest including individual businesses and services. DFC activity noticeably increased following UK government endorsement in 2012, and multi-agency collaborations were key in their creation and management. Awareness raising was the most commonly cited DFC activity. Statutory agencies and charities played an important role in the resourcing of DFCs. There was some evidence of people living with dementia being involved in organisational and operational aspects of the DFCs. The accessibility and visibility of the DFCs were variable. Conclusions: This is the first national study of DFCs. Policy endorsement and a system for recognition of DFC status are important for initiation and growth. A systematic approach to evaluation would enable DFCs to be consistent in how they demonstrate progress and how they enable people living with dementia to live well.