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dc.contributor.authorMataqi, Mona
dc.contributor.authorAslanpour, Zoe
dc.date.accessioned2019-05-23T14:05:07Z
dc.date.available2019-05-23T14:05:07Z
dc.date.issued2019-04-03
dc.identifier.citationMataqi , M & Aslanpour , Z 2019 , ' Factors influencing palliative care in advanced dementia : A systematic review ' , BMJ Supportive & Palliative Care . https://doi.org/10.1136/bmjspcare-2018-001692
dc.identifier.issn2045-435X
dc.identifier.otherPURE: 16486349
dc.identifier.otherPURE UUID: d7411c23-6414-4709-8bcc-ad11a32052ce
dc.identifier.otherScopus: 85063931386
dc.identifier.urihttp://hdl.handle.net/2299/21347
dc.description© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.
dc.description.abstractBackground: Dementia is a progressive neurodegenerative life-limiting disease. The international literature indicates that patients with advanced dementia can benefit from palliative care (PC) provided during the end-of-life phase. However, evidence indicates that currently many fail to access such provision despite the increased recognition of their palliative needs. Aim: To investigate the factors influencing provision of PC services for people with advanced dementia. Methods: A systematic review of mixed method studies written in English was undertaken. 11 electronic databases including Embase, Medline, PubMed, CINAHL and Scopus from 2008 to 2018 were searched. Narrative synthesis and content analysis were used to analyse and synthesise the data. Key findings: In total, 34 studies were included. 25 studies providing qualitative data, 6 providing quantitative data and 3 mixed methods studies. The findings identified organisational, healthcare professionals and patients-related barriers and facilitators in provision of PC for people with advanced dementia from perspective of stakeholders across different care settings. The most commonly reported barriers are lack of skills and training opportunities of the staff specific to PC in dementia, lack of awareness that dementia is a terminal illness and a palliative condition, pain and symptoms assessment/management difficulties, discontinuity of care for patients with dementia and lack of coordination across care settings, difficulty communicating with the patient and the lack of advance care planning. Conclusions: Even though the provision of PC was empirically recognised as a care step in the management of dementia, there are barriers that hinder access of patients with dementia to appropriate facilities. With dementia prevalence rising and no cure on the horizon, it is crucial that health and social care regulatory bodies integrate a palliative approach into their care using the identified facilitators to achieve optimal and effective PC in this population.en
dc.language.isoeng
dc.relation.ispartofBMJ Supportive & Palliative Care
dc.subjectadvanced dementia
dc.subjectbarriers
dc.subjectend-of-life care
dc.subjectfacilitators
dc.subjectpalliative care
dc.subjectMedicine (miscellaneous)
dc.subjectOncology(nursing)
dc.subjectMedical–Surgical
dc.titleFactors influencing palliative care in advanced dementia : A systematic reviewen
dc.contributor.institutionCentre for Clinical Practice, Safe Medicines and Drug Misuse Research
dc.contributor.institutionCentre for Health Services and Clinical Research
dc.contributor.institutionPublic Health and Patient Safety Unit
dc.contributor.institutionSchool of Life and Medical Sciences
dc.contributor.institutionWeight and Obesity Research Group
dc.description.statusPeer reviewed
dc.identifier.urlhttp://www.scopus.com/inward/record.url?scp=85063931386&partnerID=8YFLogxK
rioxxterms.versionAM
rioxxterms.versionofrecordhttps://doi.org/10.1136/bmjspcare-2018-001692
rioxxterms.typeOther
herts.preservation.rarelyaccessedtrue


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