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dc.contributor.authorSharma, Shivani
dc.contributor.authorKing, Madeline
dc.contributor.authorMooney, Roisin
dc.contributor.authorDavenport, Andrew
dc.contributor.authorDay, Clara
dc.contributor.authorDuncan, Neill
dc.contributor.authorModi, Kirit
dc.contributor.authorDa Silva-Gane, Maria
dc.contributor.authorWellsted, David
dc.contributor.authorFarrington, Ken
dc.date.accessioned2019-06-21T00:06:41Z
dc.date.available2019-06-21T00:06:41Z
dc.date.issued2019-06
dc.identifier.citationSharma , S , King , M , Mooney , R , Davenport , A , Day , C , Duncan , N , Modi , K , Da Silva-Gane , M , Wellsted , D & Farrington , K 2019 , ' How do patients from South Asian backgrounds experience life on haemodialysis in the UK? A multicentre qualitative study ' , BMJ Open , vol. 9 , no. 5 , e024739 . https://doi.org/10.1136/bmjopen-2018-024739
dc.identifier.issn2044-6055
dc.identifier.otherPURE: 16797847
dc.identifier.otherPURE UUID: 80dcae60-2acb-4b12-9586-7cc6ef04cfe6
dc.identifier.otherPubMed: 31101693
dc.identifier.otherScopus: 85065882638
dc.identifier.urihttp://hdl.handle.net/2299/21383
dc.description© Author(s) (or their employer(s)) 2018. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.
dc.description.abstractOBJECTIVES: End-stage kidney disease disproportionately affects people of South Asian origin. This study aimed to uncover the lived experiences of this group of patients on centre-based haemodialysis (HD), the most prevalent dialysis modality. DESIGN: The study utilised a qualitative focus group methodology. Seven focus groups were conducted across four NHS Trusts in the UK including three in Gujarati and two each in Punjabi and Urdu. This provided an inclusive opportunity for South Asian patients to contribute in their language of origin. A total of 24 patients participated. Focus groups were facilitated by bilingual project workers and data were forward translated and analysed using thematic analysis. RESULTS: Four themes were identified. This included (1) 'treatment imposition', which comprised of the restrictive nature of HD, the effects of treatment and the feeling of being trapped in an endless process. (2) The 'patient-clinician relationship' centred around the impact of a perceived lack of staff time, and inadequacies in the quality of interactions. (3) 'Coping strategies' highlighted the role of cognitive reappraisal, living in the moment and family support networks in facilitating adjustment. (4) 'Pursuit of transplantation' included equating this form of treatment with restoring normality, alongside cultural factors limiting hopefulness for receiving an organ. CONCLUSIONS: In general, the experiences of South Asian patients receiving HD were not unique to this ethnic group. We did find distinct issues in relation to interactions with healthcare professionals, views on access to transplantation and the importance of family support networks. The study provides useful insights which may help enhance culturally tailored renal care.en
dc.format.extent7
dc.language.isoeng
dc.relation.ispartofBMJ Open
dc.rightsOpen
dc.subjectSouth Asian
dc.subjectethnic minorities
dc.subjecthaemodialysis
dc.subjectpatient experiences
dc.subjectqualitative
dc.subjectquality of life
dc.subjectMedicine(all)
dc.titleHow do patients from South Asian backgrounds experience life on haemodialysis in the UK? : A multicentre qualitative studyen
dc.contributor.institutionHealth Research Methods Unit
dc.contributor.institutionBasic and Clinical Science Unit
dc.contributor.institutionCentre for Health Services and Clinical Research
dc.contributor.institutionCentre for Research in Psychology and Sport Sciences
dc.contributor.institutionDepartment of Psychology and Sports Sciences
dc.contributor.institutionSchool of Life and Medical Sciences
dc.contributor.institutionBehaviour Change in Health and Business
dc.description.statusPeer reviewed
dc.identifier.urlhttp://www.scopus.com/inward/record.url?scp=85065882638&partnerID=8YFLogxK
dc.relation.schoolSchool of Life and Medical Sciences
dc.description.versiontypeFinal Published version
dcterms.dateAccepted2019-06
rioxxterms.versionAM
rioxxterms.versionVoR
rioxxterms.versionofrecordhttps://doi.org/10.1136/bmjopen-2018-024739
rioxxterms.licenseref.urihttp://creativecommons.org/licenses/by-nc/4.0/
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue
herts.rights.accesstypeOpen


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