University of Hertfordshire Research Archive

        JavaScript is disabled for your browser. Some features of this site may not work without it.

        Browse

        All of UHRABy Issue DateAuthorsTitlesThis CollectionBy Issue DateAuthorsTitles

        Arkivum Files

        My Downloads
        View Item 
        • UHRA Home
        • University of Hertfordshire
        • Research publications
        • View Item
        • UHRA Home
        • University of Hertfordshire
        • Research publications
        • View Item

        Mother's experiences of the transition of young people with autism spectrum disorder to adult care

        View/Open
        Final Accepted Version (PDF, 235Kb)
        Author
        McMinn, Laura
        Schulz, Joerg
        Ludlow, Amanda
        Attention
        2299/22492
        Abstract
        Purpose: Research has shown that the transition planning of young people with autism spectrum disorders from child to adult-directed services, to be both problematic and limited in function. Mothers of children with autism spectrum disorders have been shown to be at an increased risk from maternal mental health problems, and often taken on the role of care co-coordinator during the transition period. The current study sought to explore the experiences of transition of mothers’ of young people with autism spectrum disorders in the United Kingdom (UK). Method: Interpretative phenomenological analysis was utilized in the analysis of six semi-structured interviews of mothers. Findings: Three superordinate themes were identified: Negative experiences, Resources to cope, facilitating self-preparation. All mothers had an adverse emotional response to transitioning their children from youth to adult services and all indicated a struggle with regards to their control over the process. In order to manage their negative feelings, some mothers adopted an activist attitude. Almost all mothers acknowledged the importance of support from other parents who had a child with an autism spectrum disorder. Practical implications: This study highlights the perceived lack of support and service provision for families with children with disabilities approaching adulthood. Originality/Value: This is the first study to identify the important role parent support groups may have in cultivating resilience during the transition from child to adult services.
        Publication date
        2019-07-03
        Published in
        Research and Practice in Intellectual and Developmental Disabilities
        Published version
        https://doi.org/10.1080/23297018.2018.1428497
        License
        Other
        Other links
        http://hdl.handle.net/2299/22492
        Relations
        School of Life and Medical Sciences
        Metadata
        Show full item record
        Keep in touch

        © 2019 University of Hertfordshire

        I want to...

        • Apply for a course
        • Download a Prospectus
        • Find a job at the University
        • Make a complaint
        • Contact the Press Office

        Go to...

        • Accommodation booking
        • Your student record
        • Bayfordbury
        • KASPAR
        • UH Arts

        The small print

        • Terms of use
        • Privacy and cookies
        • Criminal Finances Act 2017
        • Modern Slavery Act 2015
        • Sitemap

        Find/Contact us

        • T: +44 (0)1707 284000
        • E: ask@herts.ac.uk
        • Where to find us
        • Parking
        • hr
        • qaa
        • stonewall
        • AMBA
        • ECU Race Charter
        • disability confident
        • AthenaSwan