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dc.contributor.authorKeenan, Julia
dc.contributor.authorPoland, Fiona
dc.contributor.authorBoote, Jonathan
dc.contributor.authorHowe, Amanda
dc.contributor.authorWythe, Helena
dc.contributor.authorVarley, Anna
dc.contributor.authorVicary, Penelope
dc.contributor.authorIrvine, Lisa
dc.contributor.authorWellings, Amander
dc.date.accessioned2020-07-09T00:08:02Z
dc.date.available2020-07-09T00:08:02Z
dc.date.issued2019-05-14
dc.identifier.citationKeenan , J , Poland , F , Boote , J , Howe , A , Wythe , H , Varley , A , Vicary , P , Irvine , L & Wellings , A 2019 , ' ‘We’re passengers sailing in the same ship, but we have our own berths to sleep in’: Evaluating patient and public involvement within a regional research programme: An action research project informed by Normalisation Process Theory ' , PLoS ONE , vol. 14 , no. 5 , e0215953 . https://doi.org/10.1371/journal.pone.0215953
dc.identifier.issn1932-6203
dc.identifier.otherPURE: 22247078
dc.identifier.otherPURE UUID: 9434a363-57d8-4ee8-bdbf-04786deedda0
dc.identifier.otherBibtex: 05b0bf3875364562ba0fd8091ef591f8
dc.identifier.otherScopus: 85065780330
dc.identifier.otherORCID: /0000-0003-1936-3584/work/77091106
dc.identifier.urihttp://hdl.handle.net/2299/22948
dc.description© 2019 Keenan et al. This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
dc.description.abstractBackground: Patient and public involvement (PPI) is a requirement for UK health and social care research funding. Evidence for how best to implement PPI in research programmes, such as National Institute for Health Research (NIHR) Collaborations for Applied Health Research and Care (CLAHRCs), remains limited. This paper reports findings from an action research (AR) project called IMPRESS, which aims to strengthen PPI within CLAHRC East of England (EoE). IMPRESS combines AR with Normalisation Process Theory (NPT) to explore PPI within diverse case study projects, identifying actions to implement, test and refine to further embed PPI.Methods:We purposively selected CLAHRC EoE case study projects for in-depth analysis of PPI using NPT. Data were generated from project PPI documentation, semi-structured qualitative interviews with researchers and PPI contributors and focus groups. Transcripts and documents were subjected to abductive thematic analysis and triangulation within case. Systematic across case comparison of themes was undertaken with findings and implications refined through stakeholder consultation.Results:We interviewed 24 researchers and 13 PPI contributors and analysed 28 documents from 10 case studies. Three focus groups were held: two with researchers (n = 4 and n = 6) and one with PPI contributors (n = 5). Findings detail to what extent projects made sense of PPI, bought in to PPI, operationalised PPI and appraised it, thus identifying barriers and enablers to fully embedded PPI.Conclusion:Combining NPT with AR allows us to assess the embeddedness of PPI within projects and programme, to inform specific local action and report broader conceptual lessons for PPI knowledge and practice informing the development of an action framework for embedding PPI in research programmes. To embed PPI within similar programmes teams, professionals, disciplines and institutions should be recognised as variably networked into existing PPI support. Further focus and research is needed on sharing PPI learning and supporting innovation in PPI.en
dc.format.extent28
dc.language.isoeng
dc.relation.ispartofPLoS ONE
dc.title‘We’re passengers sailing in the same ship, but we have our own berths to sleep in’: Evaluating patient and public involvement within a regional research programme: An action research project informed by Normalisation Process Theoryen
dc.contributor.institutionSchool of Health and Social Work
dc.contributor.institutionCentre for Research in Public Health and Community Care
dc.contributor.institutionOlder People's Health and Complex Conditions
dc.description.statusPeer reviewed
rioxxterms.versionVoR
rioxxterms.versionofrecordhttps://doi.org/10.1371/journal.pone.0215953
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue


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