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dc.contributor.authorSalifu, Yakubu
dc.contributor.authorAlmack, Kathryn
dc.contributor.authorCaswell, Glenys
dc.date.accessioned2020-09-25T00:06:12Z
dc.date.available2020-09-25T00:06:12Z
dc.date.issued2020-09-18
dc.identifier.citationSalifu , Y , Almack , K & Caswell , G 2020 , ' ‘My wife is my doctor at home’: A qualitative study exploring the challenges of home-based palliative care in a resource-poor setting ' , Palliative Medicine . https://doi.org/10.1177/0269216320951107
dc.identifier.issn0269-2163
dc.identifier.otherPURE: 22547004
dc.identifier.otherPURE UUID: 55a2eaf6-3eb2-4d4e-b2a6-8dcee3a6a590
dc.identifier.otherORCID: /0000-0002-4342-241X/work/80948559
dc.identifier.otherScopus: 85091178528
dc.identifier.urihttp://hdl.handle.net/2299/23175
dc.description© The Author(s) 2020. This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
dc.description.abstractBackground: Family caregiving is common globally, but when a family member needs palliative and end-of-life care, this requires knowledge and expertise in dealing with symptoms, medication, and treatment side effects. Caring for a family member with advanced prostate cancer in the home presents practical and emotional challenges, especially in resource-poor contexts, where there are increasing palliative cases without adequate palliative care institutions. Aim: The study explored palliative and end-of-life care experiences of family caregivers and patients living at home in a resource-poor context in Ghana. Design: This is a qualitative study using thematic analysis of face-to-face interviews at two-time points. Participants: Men living with advanced prostate cancer (n = 23), family caregivers (n = 23), healthcare professionals (n = 12). Findings: Men with advanced prostate cancer face complex issues, including lack of access to professional care and a lack of resources for homecare. Family caregivers do not have easy access to professional support; they often have limited knowledge of disease progression. Patients have inadequate access to medication and other practical resources for homecare. Caregivers may be overburdened and perform the role of the patient’s ‘doctor’ at home-assessing patient’s symptoms, administering drugs, and providing hands-on care. Conclusion: Home-based care is promoted as an ideal and cost-effective model of care, particularly in Westernised palliative care models. However, in resource-poor contexts, there are significant challenges associated with the implementation of this model. This study revealed the scale of challenges family caregivers, who lack basic training on aspects of caring, face in providing home care unsupported by healthcare professionals.en
dc.language.isoeng
dc.relation.ispartofPalliative Medicine
dc.rightsOpen
dc.title‘My wife is my doctor at home’: A qualitative study exploring the challenges of home-based palliative care in a resource-poor settingen
dc.contributor.institutionCommunities, Young People and Family Lives
dc.contributor.institutionCentre for Research in Public Health and Community Care
dc.contributor.institutionSchool of Health and Social Work
dc.description.statusPeer reviewed
dc.relation.schoolSchool of Health and Social Work
dc.description.versiontypeFinal Published version
dcterms.dateAccepted2020-09-18
rioxxterms.versionVoR
rioxxterms.versionofrecordhttps://doi.org/10.1177/0269216320951107
rioxxterms.licenseref.urihttp://creativecommons.org/licenses/by/4.0/
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue
herts.rights.accesstypeOpen


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