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dc.contributor.authorPollock, Kristian
dc.contributor.authorWilkinson, Samantha
dc.contributor.authorPerry-Young, Lucy
dc.contributor.authorTurner, Nicola
dc.contributor.authorSchneider, Justine
dc.identifier.citationPollock , K , Wilkinson , S , Perry-Young , L , Turner , N & Schneider , J 2020 , ' What do family caregivers want from domiciliary care for relatives living with dementia? a qualitative study ' , Ageing and Society .
dc.identifier.otherPURE: 22464545
dc.identifier.otherPURE UUID: 501c4de2-6dd1-4990-a964-7b42fabc5b44
dc.identifier.otherRIS: urn:2B38AA50DC00BC41C4139FE7DC8A5CAB
dc.identifier.otherScopus: 85082065060
dc.description.abstractIn the current ecology of care, social, rather than medical, support is critical in enabling frail older people to live at home. This paper reports findings from a qualitative study about how home care workers (HCWs) support persons with dementia living in the community. Semi-structured qualitative interviews were carried out in England with 14 family care-givers (FCGs) recruited from a single private home care provider. A thematic analysis of the data was undertaken using the constant comparative method. In every instance, it was FCGs who initiated domiciliary care for the person with dementia, highlighting ambiguity about who is the 'client'. Rather than focusing on the HCWs' work in undertaking practical tasks and personal care, respondents prioritised HCWs as companions, providing emotional and social support for their relatives. From an organisational perspective, respondents valued the capacity of the provider to deliver a consistent, personal, reliable and punctual service. These attributes were important in supporting their relative's agency and dignity. Respondents described HCWs engaging in skilled and sensitive communication with clients but considered 'character' and 'innate' caring abilities to be more important than those derived from training. The results highlight the need to acknowledge the family, rather than the individual client, as the functioning unit of care, and to recognise the highly skilled communicative and emotional work undertaken by HCWs.en
dc.relation.ispartofAgeing and Society
dc.subjectHome care, dementia, qualitative, family caregivers
dc.subjecthome care
dc.subjectfamily care-givers
dc.subjectHealth(social science)
dc.subjectGeriatrics and Gerontology
dc.subjectPublic Health, Environmental and Occupational Health
dc.subjectSocial Psychology
dc.subjectArts and Humanities (miscellaneous)
dc.titleWhat do family caregivers want from domiciliary care for relatives living with dementia? a qualitative studyen
dc.contributor.institutionCentre for Research in Public Health and Community Care
dc.contributor.institutionSchool of Health and Social Work
dc.description.statusPeer reviewed
rioxxterms.typeJournal Article/Review

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