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        Live well, die well: the development of an online, arts-based palliative care programme in the shadow of the COVID-19 pandemic

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        00302228211009753.pdf (PDF, 283Kb)
        Author
        Roberts, Amanda
        Attention
        2299/24387
        Abstract
        The Covid-19 crisis led to an increase in the ‘total pain’ of many terminally ill patients who faced a reduction in support, due to the temporary closure of front-line palliative day therapy services. A hospice volunteer, I instigated an online day therapy programme for patients previously attending face-to-face day therapy. Participant feedback revealed the importance of providing a space for ongoing peer support for participants’ changing sense of identity, an issue for time-limited day therapy programmes. An exploration of key concepts associated with palliative care established the multiple connections between such changing identity and arts-based approaches to living well. This article charts how I used this understanding to develop an alternative, online arts-based support programme, Live well, die well. It explores the links between ongoing mutual support, arts-based activity and the reactions to a shifting identity in patients with a life-limiting illness.
        Publication date
        2021-04-11
        Published in
        OMEGA - Journal of Death and Dying
        Published version
        https://doi.org/10.1177/00302228211009753
        Other links
        http://hdl.handle.net/2299/24387
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