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dc.contributor.authorRajkomar, Atish
dc.contributor.authorFarrington, Ken
dc.contributor.authorMayer, Astrid
dc.contributor.authorWalker, Diane
dc.contributor.authorBlandford, Ann
dc.date.accessioned2021-05-26T15:30:01Z
dc.date.available2021-05-26T15:30:01Z
dc.date.issued2014-12-11
dc.identifier.citationRajkomar , A , Farrington , K , Mayer , A , Walker , D & Blandford , A 2014 , ' Patients' and carers' experiences of interacting with home haemodialysis technology: implications for quality and safety ' , BMC Nephrology , vol. 15 , 195 . https://doi.org/10.1186/1471-2369-15-195
dc.identifier.otherPURE: 13324497
dc.identifier.otherPURE UUID: 8ec7ef24-284d-4d3b-8ae1-8816451d997a
dc.identifier.otherPubMed: 25495826
dc.identifier.otherPubMedCentral: PMC4268796
dc.identifier.otherScopus: 84928668802
dc.identifier.urihttp://hdl.handle.net/2299/24531
dc.description© 2014 Rajkomar et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License.(http://creativecommons.org/licenses/by/4.0).
dc.description.abstractBACKGROUND: Little is known about patients' and carers' experiences of interacting with home haemodialysis (HHD) technology, in terms of user experience, how the design of the technology supports safety and fits with home use, and how the broader context of service provision impacts on patients' use of the technology. METHODS: Data were gathered through ethnographic observations and interviews with 19 patients and their carers associated with four different hospitals in the UK, using five different HHD machines. All patients were managing their condition successfully on HHD. Data were analysed qualitatively, focusing on themes of how individuals used the machines and how they managed their own safety. RESULTS: Findings are organised by three themes: learning to use the technology, usability of the technology, and managing safety during dialysis. Home patients want to live their lives fully, and value the freedom and autonomy that HHD gives them; they adapt use of the technology to their lives and their home context. They also consider the machines to be safe; nevertheless, most participants reported feeling scared and having to learn through mistakes in the early months of dialysing at home. Home care nurses and technicians provide invaluable support. Although participants reported on strategies for anticipating problems and keeping safe, perceived limitations of the technology and of the broader system of care led some to trade off safety against immediate quality of life. CONCLUSIONS: Enhancing the quality and safety of the patient experience in HHD involves designing technology and the broader system of care to take account of how individuals manage their dialysis in the home. Possible design improvements to enhance the quality and safety of the patient experience include features to help patients manage their dialysis (e.g. providing timely reminders of next steps) and features to support communication between families and professionals (e.g. through remote monitoring).en
dc.format.extent12
dc.language.isoeng
dc.relation.ispartofBMC Nephrology
dc.rightsOpen
dc.subjectAdult
dc.subjectAged
dc.subjectCaregivers
dc.subjectCommunication
dc.subjectEquipment Design
dc.subjectEquipment Safety
dc.subjectFemale
dc.subjectHemodialysis, Home
dc.subjectHumans
dc.subjectLearning Curve
dc.subjectMale
dc.subjectMiddle Aged
dc.subjectPatient Education as Topic
dc.subjectPatient Satisfaction
dc.subjectProfessional-Family Relations
dc.subjectQualitative Research
dc.subjectQuality of Life
dc.subjectYoung Adult
dc.subjectJournal Article
dc.subjectResearch Support, Non-U.S. Gov't
dc.titlePatients' and carers' experiences of interacting with home haemodialysis technology: implications for quality and safetyen
dc.contributor.institutionBasic and Clinical Science Unit
dc.contributor.institutionCentre for Health Services and Clinical Research
dc.contributor.institutionSchool of Life and Medical Sciences
dc.contributor.institutionDepartment of Pharmacy, Pharmacology and Postgraduate Medicine
dc.description.statusPeer reviewed
dc.relation.schoolSchool of Life and Medical Sciences
dc.description.versiontypeFinal Published version
dcterms.dateAccepted2014-12-11
rioxxterms.versionVoR
rioxxterms.versionofrecordhttps://doi.org/10.1186/1471-2369-15-195
rioxxterms.licenseref.urihttp://creativecommons.org/licenses/by/4.0/
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue
herts.rights.accesstypeOpen


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