dc.contributor.author | Randall, James | |
dc.contributor.author | Nolte, Lizette | |
dc.contributor.author | Wellsted, David | |
dc.date.accessioned | 2021-07-26T09:45:01Z | |
dc.date.available | 2021-07-26T09:45:01Z | |
dc.date.issued | 2021-07-20 | |
dc.identifier.citation | Randall , J , Nolte , L & Wellsted , D 2021 , ' Facing loss and finding hope in narrating together: Accounts of parenthood following the death of a child to muscular dystrophy ' , Illness, Crisis & Loss . https://doi.org/10.1177/10541373211013719 | |
dc.identifier.issn | 1054-1373 | |
dc.identifier.other | ORCID: /0000-0002-2895-7838/work/106342696 | |
dc.identifier.uri | http://hdl.handle.net/2299/24908 | |
dc.description | © The Author(s) 2021. This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/). | |
dc.description.abstract | Muscular dystrophy is a terminal muscle-wasting condition, whereby families face continuous challenges as their child’s health deteriorates. This research explored accounts of parenthood following bereavement of their child to muscular dystrophy. Narrative inquiry was used to analyse interviews with four couples. Findings suggest an importance in narrating adversities (waking up to different futures) and positive influence (creating legacies). The research highlighted how humour is often used to support others to witness painful accounts (humour through the struggle). Parents appeared to co-regulate the painfulness of narrating loss (storytelling together). Further research is needed on conjoint narrative interviews and how these may enable participants to address shared loss experiences. Practitioners who support bereaved parents could consider the potential value highlighted in this study of meeting with parents conjointly, which include that, through co-regulatory, collaborative processes, families seemed to be supported to reach narrative cohesion, sensitively and safely, when facing loss and bereavement. | en |
dc.format.extent | 20 | |
dc.format.extent | 375957 | |
dc.language.iso | eng | |
dc.relation.ispartof | Illness, Crisis & Loss | |
dc.title | Facing loss and finding hope in narrating together: Accounts of parenthood following the death of a child to muscular dystrophy | en |
dc.contributor.institution | Department of Psychology, Sport and Geography | |
dc.contributor.institution | Health and Clinical Psychology Research Group | |
dc.contributor.institution | Centre for Research in Psychology and Sport Sciences | |
dc.contributor.institution | School of Life and Medical Sciences | |
dc.contributor.institution | Psychology | |
dc.contributor.institution | Centre for Health Services and Clinical Research | |
dc.contributor.institution | Health Research Methods Unit | |
dc.contributor.institution | Basic and Clinical Science Unit | |
dc.contributor.institution | Behaviour Change in Health and Business | |
dc.description.status | Peer reviewed | |
rioxxterms.versionofrecord | 10.1177/10541373211013719 | |
rioxxterms.type | Journal Article/Review | |
herts.preservation.rarelyaccessed | true | |