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dc.contributor.authorRandall, James
dc.contributor.authorNolte, Lizette
dc.contributor.authorWellsted, David
dc.date.accessioned2021-07-26T09:45:01Z
dc.date.available2021-07-26T09:45:01Z
dc.date.issued2021-07-20
dc.identifier.citationRandall , J , Nolte , L & Wellsted , D 2021 , ' Facing loss and finding hope in narrating together: Accounts of parenthood following the death of a child to muscular dystrophy ' , Illness, Crisis and Loss . https://doi.org/10.1177/10541373211013719
dc.identifier.issn1054-1373
dc.identifier.otherPURE: 25090242
dc.identifier.otherPURE UUID: e2acf1d1-b4e8-4665-8110-d898bb67ade8
dc.identifier.otherScopus: 85110998101
dc.identifier.urihttp://hdl.handle.net/2299/24908
dc.description© The Author(s) 2021. This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/).
dc.description.abstractMuscular dystrophy is a terminal muscle-wasting condition, whereby families face continuous challenges as their child’s health deteriorates. This research explored accounts of parenthood following bereavement of their child to muscular dystrophy. Narrative inquiry was used to analyse interviews with four couples. Findings suggest an importance in narrating adversities (waking up to different futures) and positive influence (creating legacies). The research highlighted how humour is often used to support others to witness painful accounts (humour through the struggle). Parents appeared to co-regulate the painfulness of narrating loss (storytelling together). Further research is needed on conjoint narrative interviews and how these may enable participants to address shared loss experiences. Practitioners who support bereaved parents could consider the potential value highlighted in this study of meeting with parents conjointly, which include that, through co-regulatory, collaborative processes, families seemed to be supported to reach narrative cohesion, sensitively and safely, when facing loss and bereavement.en
dc.format.extent20
dc.language.isoeng
dc.relation.ispartofIllness, Crisis and Loss
dc.rightsOpen
dc.titleFacing loss and finding hope in narrating together: Accounts of parenthood following the death of a child to muscular dystrophyen
dc.contributor.institutionDepartment of Psychology, Sport and Geography
dc.contributor.institutionHealth and Clinical Psychology group
dc.contributor.institutionCentre for Research in Psychology and Sport Sciences
dc.contributor.institutionSchool of Life and Medical Sciences
dc.contributor.institutionPsychology
dc.contributor.institutionCentre for Health Services and Clinical Research
dc.contributor.institutionHealth Research Methods Unit
dc.contributor.institutionBasic and Clinical Science Unit
dc.contributor.institutionBehaviour Change in Health and Business
dc.description.statusPeer reviewed
dc.relation.schoolSchool of Life and Medical Sciences
dc.description.versiontypeFinal Published version
dcterms.dateAccepted2021-07-20
rioxxterms.versionVoR
rioxxterms.versionofrecordhttps://doi.org/10.1177/10541373211013719
rioxxterms.licenseref.urihttp://creativecommons.org/licenses/by/4.0/
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue
herts.rights.accesstypeOpen


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