dc.contributor.author | Roberts, Amanda | |
dc.date.accessioned | 2021-09-01T13:27:24Z | |
dc.date.available | 2021-09-01T13:27:24Z | |
dc.date.issued | 2021-08-17 | |
dc.identifier.citation | Roberts , A 2021 , ' From artmaking to changemaking: Conceptualizing the PATCH (Palliative care patient-led change) programme ' , Progress in Palliative Care . https://doi.org/10.1080/09699260.2021.1962669 | |
dc.identifier.issn | 1743-291X | |
dc.identifier.uri | http://hdl.handle.net/2299/25032 | |
dc.description | © 2021 Informa UK Limited, trading as Taylor & Francis Group. | |
dc.description.abstract | This article charts the learning from an online, artmaking programme supporting individuals with a life-limiting illness. The programme sought to fill a gap caused by the temporary closure of face-to-face UK hospice-based day therapy programmes during the COVID-19 pandemic. Participants’ comments on this arts-based programme illustrated the sense of disrupted and diminished identity, linked to a deceased sense of agency, which terminal illness can bring. Responding to this need for increased agency led to the development of the PATCH (Palliative care patient-led change) programme. Individuals with a terminal illness will be invited to join an online collaborative group, to identify a specific issue they wish to address and to lead the change they wish to see. The PATCH group will be supported by a facilitator and a team of volunteers, whose roles will include supporting participants in planning and executing their change strategy. This article presents the conceptual underpinning for the PATCH programme, offering a tentative theory of the relationship between identity, moral purpose, agency, illness and the leadership of change for those living with a life-limiting illness. Challenging stereotypical views of palliative care patients, it explores a new community and asset-based approach to end-of-life care which supports individuals at the end of life in developing a positive self-view. | en |
dc.format.extent | 11 | |
dc.format.extent | 539439 | |
dc.language.iso | eng | |
dc.relation.ispartof | Progress in Palliative Care | |
dc.subject | Agency | |
dc.subject | Change | |
dc.subject | Identity | |
dc.subject | Leadership | |
dc.subject | Moral purpose | |
dc.subject | Palliative care | |
dc.subject | Nursing(all) | |
dc.title | From artmaking to changemaking: Conceptualizing the PATCH (Palliative care patient-led change) programme | en |
dc.contributor.institution | School of Education | |
dc.description.status | Peer reviewed | |
dc.identifier.url | http://www.scopus.com/inward/record.url?scp=85112681209&partnerID=8YFLogxK | |
rioxxterms.versionofrecord | 10.1080/09699260.2021.1962669 | |
rioxxterms.type | Journal Article/Review | |
herts.preservation.rarelyaccessed | true | |