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dc.contributor.authorRoberts, Amanda
dc.date.accessioned2021-09-01T13:27:24Z
dc.date.available2021-09-01T13:27:24Z
dc.date.issued2021-08-17
dc.identifier.citationRoberts , A 2021 , ' From artmaking to changemaking: Conceptualizing the PATCH (Palliative care patient-led change) programme ' , Progress in Palliative Care . https://doi.org/10.1080/09699260.2021.1962669
dc.identifier.otherPURE: 25824793
dc.identifier.otherPURE UUID: 3d48aa12-b8fe-4414-a456-001b6f20e93c
dc.identifier.otherScopus: 85112681209
dc.identifier.urihttp://hdl.handle.net/2299/25032
dc.description.abstractThis article charts the learning from an online, artmaking programme supporting individuals with a life-limiting illness. The programme sought to fill a gap caused by the temporary closure of face-to-face UK hospice-based day therapy programmes during the COVID-19 pandemic. Participants’ comments on this arts-based programme illustrated the sense of disrupted and diminished identity, linked to a deceased sense of agency, which terminal illness can bring. Responding to this need for increased agency led to the development of the PATCH (Palliative care patient-led change) programme. Individuals with a terminal illness will be invited to join an online collaborative group, to identify a specific issue they wish to address and to lead the change they wish to see. The PATCH group will be supported by a facilitator and a team of volunteers, whose roles will include supporting participants in planning and executing their change strategy. This article presents the conceptual underpinning for the PATCH programme, offering a tentative theory of the relationship between identity, moral purpose, agency, illness and the leadership of change for those living with a life-limiting illness. Challenging stereotypical views of palliative care patients, it explores a new community and asset-based approach to end-of-life care which supports individuals at the end of life in developing a positive self-view.en
dc.format.extent11
dc.language.isoeng
dc.relation.ispartofProgress in Palliative Care
dc.titleFrom artmaking to changemaking: Conceptualizing the PATCH (Palliative care patient-led change) programmeen
dc.contributor.institutionSchool of Education
dc.description.statusPeer reviewed
rioxxterms.versionVoR
rioxxterms.versionofrecordhttps://doi.org/10.1080/09699260.2021.1962669
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue


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