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dc.contributor.authorHandley, Melanie
dc.contributor.authorParker, Deborah
dc.contributor.authorBunn, Frances
dc.contributor.authorGoodman, Claire
dc.date.accessioned2022-01-27T10:30:03Z
dc.date.available2022-01-27T10:30:03Z
dc.date.issued2022-01-01
dc.identifier.citationHandley , M , Parker , D , Bunn , F & Goodman , C 2022 , ' A qualitative comparison of care home staff and palliative care specialists’ experiences of providing end of life care to people living and dying with dementia in care homes in two countries: A focus group study ' , Palliative Medicine , vol. 36 , no. 1 , pp. 114-123 . https://doi.org/10.1177/02692163211043374 , https://doi.org/10.1177/02692163211043374
dc.identifier.issn0269-2163
dc.identifier.otherPURE: 26345710
dc.identifier.otherPURE UUID: f396aa47-b01a-4e97-9b69-59bac69ab5e1
dc.identifier.otherJisc: c230daa8ab7c47fb8bd63f5fd4f88876
dc.identifier.otherScopus: 85114288307
dc.identifier.otherJisc: c230daa8ab7c47fb8bd63f5fd4f88876
dc.identifier.otherpublisher-id: 10.1177_02692163211043374
dc.identifier.otherORCID: /0000-0002-8037-5042/work/107243349
dc.identifier.urihttp://hdl.handle.net/2299/25333
dc.description© The Author(s) 2021. This article is distributed under the terms of the Creative Commons Attribution-Non Commercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0
dc.description.abstractBackground: Palliative care for people with dementia dying in care homes is an important aspect of long-term care. Whilst there is consensus about the principles of palliative care, less is known about how care home staff negotiate and influence decisions around end of life and how organisational context shapes that process. Aim: To explore the views and experiences of care home staff and palliative care specialists on end of life care in care homes and understand how care home settings affected palliative care provision in England and Australia. Design/participants: Eight focus groups in Australia and England with care home staff and palliative care specialists (n = 49). Reflexive thematic analysis was undertaken. Findings: Australian participants reported collaboration between care home staff, visiting professions and family members though case conferences. English participants discussed resident-focussed involvement from specialists that was less formally organised. Negotiating roles and responsibilities in end of life care; the importance of relationships to overcome deficiencies in formal processes; and the legitimacy and authority of advance care planning at times of crisis were recurring themes. The organisation and embedding of end of life care in processes and practices of care homes differed; this closely linked to care home procedures in Australia but was less apparent in England. Conclusion: In both countries, partnership working was recognised and valued as key to effective palliative care. Work that enables care home staff to identify challenges with visiting professionals, such as agreeing priorities for care and negotiating their shared responsibilities, may lead to context-sensitive, sustainable solutions.en
dc.format.extent10
dc.language.isoeng
dc.relation.ispartofPalliative Medicine
dc.rightsOpen
dc.subjectOriginal Articles
dc.subjectCare homes
dc.subjectdementia
dc.subjectpalliative care
dc.subjectfocus groups
dc.subjectqualitative research
dc.subjectAnesthesiology and Pain Medicine
dc.titleA qualitative comparison of care home staff and palliative care specialists’ experiences of providing end of life care to people living and dying with dementia in care homes in two countries: A focus group studyen
dc.contributor.institutionSchool of Health and Social Work
dc.contributor.institutionOlder People's Health and Complex Conditions
dc.contributor.institutionCentre for Research in Public Health and Community Care
dc.contributor.institutionUniversity of Hertfordshire
dc.contributor.institutionCentre for Climate Change Research
dc.contributor.institutionEvidence Based Practice
dc.contributor.institutionNursing, Midwifery and Social Work
dc.contributor.institutionWeight and Obesity Research Group
dc.description.statusPeer reviewed
dc.identifier.urlhttp://www.scopus.com/inward/record.url?scp=85114288307&partnerID=8YFLogxK
dc.relation.schoolSchool of Health and Social Work
dc.description.versiontypeFinal Published version
dcterms.dateAccepted2022-01-01
rioxxterms.versionVoR
rioxxterms.versionofrecordhttps://doi.org/10.1177/02692163211043374
rioxxterms.licenseref.urihttp://creativecommons.org/licenses/by-nc/4.0/
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue
herts.rights.accesstypeOpen


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