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dc.contributor.authorFriedner, Kimberley
dc.contributor.authorSolomons, Wendy
dc.contributor.authorFlannery, Halina
dc.contributor.authorHarrington, Jenna
dc.date.accessioned2022-02-28T12:45:01Z
dc.date.available2022-02-28T12:45:01Z
dc.date.issued2021-10-01
dc.identifier.citationFriedner , K , Solomons , W , Flannery , H & Harrington , J 2021 , ' Family narratives of lives with persistent physical symptom conditions ' , Clinical Child Psychology and Psychiatry , vol. 26 , no. 4 , pp. 1257-1270 . https://doi.org/10.1177/13591045211033188
dc.identifier.issn1359-1045
dc.identifier.otherJisc: a22074925ef14beaacbacff8fdd5372d
dc.identifier.otherORCID: /0000-0002-6443-9309/work/109317530
dc.identifier.urihttp://hdl.handle.net/2299/25401
dc.description© The Author(s) 2021. This article is distributed under the terms of the Creative Commons Attribution-Non Commercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/)
dc.description.abstractBackground: Literature reviews revealed no existing research on family narratives of living with multigenerational persistent physical symptom (PPS) conditions. The current study examined the personal and family narratives of one such family, from a relational/systemic perspective. Method: This research employed a qualitative research design, specifically using narrative methodologies to explore the experiences of a single family comprising two parents and their three children. All the children and their mother had a diagnosis of Ehlers–Danlos syndrome (EDS) but are specifically afflicted with PPS. The father is in good health. Using narrative inquiry, the family members were interviewed together and then individually. The interviews were audio-recorded, transcribed and analysed using narrative analysis in NVivo. Findings: Overarching narratives were stories of loss and sacrifice and stories of family unity. An exploration of the family’s negotiation of roles and identities is presented in the context of stigmatised illness. Discussion: Novel findings are presented in the context of the central role of the mother, the importance of family cohesion and the impact to family life resulting from living with stigmatised illness. Lastly, clinical implications and future research ideas are discussed.en
dc.format.extent14
dc.format.extent592649
dc.language.isoeng
dc.relation.ispartofClinical Child Psychology and Psychiatry
dc.subjectNarrative analysis
dc.subjectPPS
dc.subjectidentity formation
dc.subjectpersistent physical symptoms
dc.subjectrelationships
dc.subjectroles
dc.subjectArticles
dc.subjectNarration
dc.subjectHumans
dc.subjectMothers
dc.subjectFemale
dc.subjectQualitative Research
dc.subjectChild
dc.subjectPsychiatry and Mental health
dc.subjectClinical Psychology
dc.subjectPediatrics, Perinatology, and Child Health
dc.titleFamily narratives of lives with persistent physical symptom conditionsen
dc.contributor.institutionCentre for Research in Psychology and Sports
dc.contributor.institutionHealth and Clinical Psychology Research Group
dc.contributor.institutionDepartment of Psychology, Sport and Geography
dc.contributor.institutionSchool of Life and Medical Sciences
dc.description.statusPeer reviewed
dc.identifier.urlhttp://www.scopus.com/inward/record.url?scp=85115421469&partnerID=8YFLogxK
rioxxterms.versionofrecord10.1177/13591045211033188
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue


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