dc.contributor.author | Kelly, Carole | |
dc.contributor.author | Sharma, Shivani | |
dc.contributor.author | Theresa-Jieman, Anna | |
dc.contributor.author | Ramon, Shulamit | |
dc.date.accessioned | 2022-05-26T12:15:02Z | |
dc.date.available | 2022-05-26T12:15:02Z | |
dc.date.issued | 2022-05-20 | |
dc.identifier.citation | Kelly , C , Sharma , S , Theresa-Jieman , A & Ramon , S 2022 , ' Sense-making narratives of autistic women diagnosed in adulthood: a systematic review of the qualitative research ' , Disability and Society . https://doi.org/10.1080/09687599.2022.2076582 | |
dc.identifier.issn | 0968-7599 | |
dc.identifier.uri | http://hdl.handle.net/2299/25531 | |
dc.description | © 2022 Informa UK Limited, trading as Taylor & Francis Group. This is the accepted manuscript version of an article which has been published in final form at https://doi.org/10.1080/09687599.2022.2076582 | |
dc.description.abstract | Few qualitative studies have explored the lives of autistic women diagnosed in adulthood, despite this knowledge being essential to inform awareness of the intersection of autism and gender. This systematic review was undertaken to synthesise available qualitative evidence on the lived experience of autistic women diagnosed in adulthood. The accounts of 50 women from nine qualitative studies were synthesised using thematic analysis and four super-ordinate themes were identified: wanting to ‘fit in’; making sense of past experiences; developing a new ‘autistic identity’; and barriers to support. The autistic women spent many years without a diagnosis or autism-specific support, felt misunderstood, and experienced social exclusion. Following their diagnosis, they reframed these experiences into new ‘sense-making narratives’, used social media to contact other autistic people, and developed neurodiverse-affirming autistic identities. The studies suggested that health and social care professionals were not always able to recognise, refer, diagnose, and support autistic women effectively. | en |
dc.format.extent | 34 | |
dc.format.extent | 674032 | |
dc.language.iso | eng | |
dc.relation.ispartof | Disability and Society | |
dc.title | Sense-making narratives of autistic women diagnosed in adulthood: a systematic review of the qualitative research | en |
dc.contributor.institution | Psychology | |
dc.contributor.institution | Centre for Research in Psychology and Sport Sciences | |
dc.contributor.institution | Centre for Health Services and Clinical Research | |
dc.contributor.institution | Basic and Clinical Science Unit | |
dc.contributor.institution | Health and Clinical Psychology Research Group | |
dc.contributor.institution | Behaviour Change in Health and Business | |
dc.contributor.institution | Department of Psychology, Sport and Geography | |
dc.contributor.institution | School of Life and Medical Sciences | |
dc.contributor.institution | Department of Allied Health Professions, Midwifery and Social Work | |
dc.contributor.institution | Social Work, Mental Health and Learning Disabilities | |
dc.contributor.institution | Nursing, Midwifery and Social Work | |
dc.contributor.institution | School of Health and Social Work | |
dc.contributor.institution | Centre for Future Societies Research | |
dc.contributor.institution | Centre for Applied Clinical, Health and Care Research (CACHE) | |
dc.description.status | Peer reviewed | |
dc.date.embargoedUntil | 2023-11-20 | |
rioxxterms.versionofrecord | 10.1080/09687599.2022.2076582 | |
rioxxterms.type | Journal Article/Review | |
herts.preservation.rarelyaccessed | true | |