Show simple item record

dc.contributor.authorBrady, Louca-Mai
dc.contributor.authorMiller, Jacqueline
dc.contributor.authorMcFarlane-Rose, Eleri
dc.contributor.authorNoor, Jasmine
dc.contributor.authorNoor, Rhianne
dc.contributor.authorDahlmann-Noor, Annegret
dc.date.accessioned2023-03-21T17:15:01Z
dc.date.available2023-03-21T17:15:01Z
dc.date.issued2023-03-20
dc.identifier.citationBrady , L-M , Miller , J , McFarlane-Rose , E , Noor , J , Noor , R & Dahlmann-Noor , A 2023 , ' “We know that our voices are valued, and that people are actually going to listen”: co-producing an evaluation of a young people’s research advisory group ' , Research Involvement and Engagement , vol. 9 , no. 1 , 11 , pp. 1-15 . https://doi.org/10.1186/s40900-023-00419-4
dc.identifier.issn2056-7529
dc.identifier.otherJisc: 969044
dc.identifier.otherJisc: 969044
dc.identifier.otherpublisher-id: s40900-023-00419-4
dc.identifier.othermanuscript: 419
dc.identifier.otherORCID: /0000-0002-2557-8955/work/131544928
dc.identifier.urihttp://hdl.handle.net/2299/26132
dc.description© The Author(s) 2023. Open Access This article is licensed under a Creative Commons Attribution 4.0 International License. https://creativecommons.org/licenses/by/4.0/
dc.description.abstractBackground: Children and young people’s (CYP) involvement is an increasing priority in UK healthcare and in heath research, alongside recognition that involving CYP in research requires different considerations to involving adults. Underpinned by children’s rights and a co-production ethos this paper, co-authored with young evaluators, explores the learning from a co-produced evaluation of eyeYPAG, a young persons’ research advisory group (YPAG) for eye and vision research based at Moorfields Eye Hospital, London, UK. Methods: A team of young evaluators, supported by the eyeYPAG facilitator, conducted focus groups and online surveys with YPAG members, their parents and carers, researchers, group facilitators and funders. Qualitative data was analysed using a collaborative reflexive thematic analysis approach. Quantitative data, limited by the small number of participants, was analysed in Excel and reported as descriptive data. Results: CYP valued the social and creative aspects of the group as well as learning about research and developing skills and confidence. Learning was a two-way process, with both researchers and facilitators reflecting on how much they had learnt from working with the YPAG. All participants talked about the importance of impact, feeling that CYP are making a difference to research, as well as CYP’s right to be involved. Effective planning and facilitation were key to the success of the group, in relation to accessibility and the development and delivery of sessions both online and in-person. Resourcing and administration were key challenges to this, as was engaging researchers who were not already converted to the public involvement cause. As the nature of a YPAG is that it primarily focuses on advising researcher-led projects, co-production was identified as something that the group was ‘working towards’, including through this evaluation. Co-producing with CYP involves building up knowledge, confidence and acknowledging power dynamics. Conclusions: Co-producing an evaluation enabled us to learn about the benefits and challenges of involving CYP in research, as well as how to involve them in the development of that evidence. An ethos of co-production and children’s rights helped to shift the balance of power and develop more engaging and inclusive ways of working.en
dc.format.extent15
dc.format.extent1713785
dc.language.isoeng
dc.relation.ispartofResearch Involvement and Engagement
dc.subjectResearch
dc.subjectPublic involvement
dc.subjectPPI
dc.subjectCo-production
dc.subjectYoung people
dc.subjectPaediatric research
dc.subjectEvaluation
dc.subjectEye and vision research
dc.subjectOphthalmology
dc.subjectHealth(social science)
dc.subjectGeneral Health Professions
dc.title“We know that our voices are valued, and that people are actually going to listen”: co-producing an evaluation of a young people’s research advisory groupen
dc.contributor.institutionSchool of Health and Social Work
dc.contributor.institutionPatient Experience and Public Involvement
dc.contributor.institutionCommunities, Young People and Family Lives
dc.contributor.institutionCentre for Research in Public Health and Community Care
dc.contributor.institutionCentre for Applied Clinical, Health and Care Research (CACHE)
dc.description.statusPeer reviewed
dc.identifier.urlhttp://www.scopus.com/inward/record.url?scp=85150868883&partnerID=8YFLogxK
rioxxterms.versionofrecord10.1186/s40900-023-00419-4
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue


Files in this item

Thumbnail

This item appears in the following Collection(s)

Show simple item record