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dc.contributor.authorHanratty , Barbara
dc.contributor.authorWolters , Arne
dc.contributor.authorTowers, Ann-Marie
dc.contributor.authorSpilsbury, Karen
dc.contributor.authorMeyer, Julienne
dc.contributor.authorKillet , Anne
dc.contributor.authorJones, Liz
dc.contributor.authorGordon , Adam
dc.contributor.authorBurton , Jennifer
dc.contributor.authorAkdur, Gizdem
dc.contributor.authorIrvine, Lisa
dc.contributor.authorWarmoth, Krystal
dc.contributor.authorLiddle, Jennifer
dc.contributor.authorGoodman, Claire
dc.date.accessioned2023-11-30T19:15:01Z
dc.date.available2023-11-30T19:15:01Z
dc.date.issued2023-11-07
dc.identifier.citationHanratty , B , Wolters , A , Towers , A-M , Spilsbury , K , Meyer , J , Killet , A , Jones , L , Gordon , A , Burton , J , Akdur , G , Irvine , L , Warmoth , K , Liddle , J & Goodman , C 2023 , ' Data collection in care homes for older adults: A national survey in England ' , Journal of Long-Term Care , vol. 2023 , pp. 288–296 . https://doi.org/10.31389/jltc.199
dc.identifier.issn2516-9122
dc.identifier.otherORCID: /0000-0001-7326-4750/work/147917069
dc.identifier.otherORCID: /0000-0003-1936-3584/work/147917070
dc.identifier.otherORCID: /0000-0003-0615-5778/work/147917403
dc.identifier.otherORCID: /0000-0002-8938-4893/work/147917530
dc.identifier.urihttp://hdl.handle.net/2299/27240
dc.description© 2023 The Author(s). This is an open access article under the Creative Commons Attribution-NonCommercial-NoDerivatives CC BY-NC-ND licence, https://creativecommons.org/licenses/by-nc-nd/4.0/
dc.description.abstractContext: In many countries, there is a specification for information that should be collected by care homes. So-called ‘minimum data-sets’ (MDS) are often lengthy, and report on resident health and wellbeing, staff, and facilities. In the UK, the absence of any easily accessible data on the care home population was highlighted at the start of the COVID-19 pandemic. Care homes faced multiple requests for data from external agencies who had little knowledge of what care homes were already collecting. Objective: This study aimed to identify the range (and method) of data collected by care home organisations, in a country without a mandated MDS. Methods: Online survey of care homes (with/without nursing) in England. Care homes recruited via research and care home networks, social media. Questions covered data content, storage, and views on data sharing, analysed with descriptive statistics. Findings: 273 responses were received, representing over 5,000 care homes. Care homes reported extensive data on the health, care and support needs of individual residents, their preferences, and activities. Clinical measures and tools adopted from health were commonly used, but few collected information on quality-of-life. Care homes reported uses of these data that included monitoring care quality, medication use, staff training needs, budgeting, and marketing. Concerns over privacy and data protection regulations are potential barriers to data sharing. Implications: These findings challenge the notion that incentives or mandates are required to stimulate data collection in care homes. Care home organisations are collecting an extensive range of resident-level information for their own uses. Countries considering introducing social care records or an MDS could start by working with care home organisations to review existing data collection and evaluate the implications of collecting and sharing data. A critical approach to the appropriateness of health-related tools in this setting is overdue.en
dc.format.extent9
dc.format.extent939397
dc.language.isoeng
dc.relation.ispartofJournal of Long-Term Care
dc.subjectaged
dc.subjectdata collection
dc.subjectminimum datasets
dc.subjectnursing homes
dc.subjectHealth(social science)
dc.subjectHealth Professions (miscellaneous)
dc.titleData collection in care homes for older adults: A national survey in Englanden
dc.contributor.institutionCentre for Research in Public Health and Community Care
dc.contributor.institutionOlder People's Health and Complex Conditions
dc.contributor.institutionSchool of Health and Social Work
dc.contributor.institutionCentre for Future Societies Research
dc.contributor.institutionPlace Based Ageing
dc.description.statusPeer reviewed
dc.identifier.urlhttp://www.scopus.com/inward/record.url?scp=85186910377&partnerID=8YFLogxK
rioxxterms.versionofrecord10.31389/jltc.199
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue


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