Barriers to breast cancer care and recommendations for improving services: findings from a UK qualitative study with an Asian Women’s Cancer Support Group

Abstract

Objectives: Breast cancer is the most common cancer in the UK, accounting for 15% of all new cases in women. Evidence still points to disparities in outcomes linked to ethnicity and screening uptake is overall lower in South Asians than the White population. We investigated the experiences and perceptions of Gujarati Hindu community members on their ‘cancer journeys’. Design: This study took a participatory approach, involving participants in generating and refining recommendations to improve treatment based on their cohort’s experiences and perceptions. Data were collected through two focus groups in 2022, followed by a feedback workshop session, where participants helped refine the research team’s initial analysis and agree recommendation. Data were analysed thematically. Results: 14 women participated in this study from the same support group. They had experienced breast cancer or were undergoing breast cancer treatment at the time of data collection and lived in Greater London. Barriers to engaging in the three key stages of their ‘cancer journey’ (screening, diagnosis, and treatment) were identified. These centred around language difficulties, not knowing what to expect, and not knowing who to ask for information. Suggestions for improvements included recruiting community champions, having diverse representation on educational materials, and referrals to support groups. Conclusion: This study adds to the growing literature on the need for culturally tailored and sensitive approaches to cancer treatment. It reinforces the need for health professionals’ training around effectively communicating with diverse groups and normalising referral to support groups.