Talking about living and dying with the oldest old : public involvement in a study on end of life care in care homes.
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Author
Goodman, Claire
Mathie, Elspeth
Cowe, Marion
Mendoza, Alex
Westwood, Daphne
Munday, Diane
Wilson, Patricia
Crang, Clare
Froggatt, Katherine
Iliffe, Steve
Manthorpe, Jill
Gage, Heather
Barclay, Stephen
Attention
2299/7321
Abstract
Public involvement in research on sensitive subjects, such as death and dying, can help to ensure that questions are framed to reflect the interests of their peers, develop a shared understanding of issues raised, and moderate the often unequal power relationship between researcher and participant. This paper describes the contribution and impact of older members of a Public Involvement in Research group (PIRg) to a study on living and dying in care homes.