Narrative Accounts of Family Caregivers of Adults Diagnosed with Non-Epileptic Attack Disorder

Abstract

The experiences of family caregivers of adults diagnosed with Non-Epileptic Attack Disorder (NEAD) are under-researched. To address this lack of research and the Department of Health’s (DOH) aim to focus on the experiences of caregivers to inform the development of appropriate services (DOH, 2010), this narrative inquiry focuses on the stories told by eight caregivers of adults diagnosed with NEAD. Each narrative, which was collected through loosely structured interviews, was analysed from both a content and performative perspective. Multiple readings of the narratives revealed that caregivers told two different story ‘types’ about their experiences: stories of ‘biographical continuity’ and stories of ‘biographical disruption’. These findings are discussed in relation to the relevant literature and clinical implications. Methodological limitations and directions for future research are also presented. The study provides a valuable insight for any professional working with caregivers of individuals with NEAD and it is hoped that this research will promote dialogue amongst professionals and readers.