Publication
Number of items: 4.
Article
The Burden of Disease in Pyruvate Kinase Deficiency: Patients' Perception of the Impact on Health-Related Quality of Life. (2018)
RF Grace,
L Cohen,
S Egan,
T Wells,
B Witherspoon,
A Ryan,
Mir-Saeed Shayegan Salek,
S Bodie
and
RJ Klaassen
Haematological malignancy: are we measuring what is important to patients? A systematic review of quality of life instruments. (2019)
Pushpendra Goswami,
Yasmin Khatib
and
Sam Salek
The Burden of Disease in Pyruvate Kinase Deficiency: Patients' Perception of the Impact on Health-Related Quality of Life. (2018)
RF Grace,
L Cohen,
S Egan,
T Wells,
B Witherspoon,
A Ryan,
Mir-Saeed Shayegan Salek,
S Bodie
and
RJ Klaassen
picture_as_pdf
Development of the Pyruvate Kinase Deficiency Diary (PKDD) and Pyruvate Kinase Deficiency Impact Assessment (PKDIA): Disease-Specific Assessments. (2019)
Sam Salek
