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Producing ‘Top Tips’ for care home staff during the COVID-19 pandemic in England: rapid reviews inform evidence-based practice but reveal major gaps
(2020-10-22)
This paper analyses learning from the first three months of the COVID-19 crisis in the UK. It takes the example of a project that responded to questions and concerns raised by front-line care staff by producing research-based ...
National Institute for Health Research Policy Research Programme Project Dementia Friendly Communities: The DEMCOM evaluation (PR-R15-0116- 21003)
(National Institute for Health Research (NIHR), 2020-10-13)
Final Report: National Institute for Health Research Policy Research Programme Project Dementia Friendly Communities: The DEMCOM evaluation (PR-R15-0116- 21003) As the number of people living with dementia is increasing ...
A survey of the experience of living with dementia in a dementia friendly community
(2020-10-08)
Dementia Friendly Communities (DFCs) are one way in which people living with dementia can be supported to be active, engaged and valued citizens. Quantitative evaluations of the experiences of those with dementia living ...
Young onset dementia: Public involvement in co-designing community-based support
(2020-05-01)
Whilst the support requirements of people diagnosed with young onset dementia are well-documented, less is known about what needs to be in place to provide age-appropriate care. To understand priorities for service planning ...
Dementia Friendly Communities in England: A scoping study
(2019-08-01)
Objectives: To describe the characteristics of Dementia Friendly Communities (DFCs) across England in order to inform a national evaluation of their impact on the lives of those affected by dementia. Methods: DFCs in England ...
How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation
(2018-04-13)
Objectives: To explore how embedded patient and public involvement is within mainstream health research following two decades of policy-driven work to underpin health research with patient and public involvement in England. ...
Age-appropriate services for people diagnosed with young onset dementia (YOD): a systematic review
(2017-06-16)
Background: Literature agrees that post-diagnostic services for people living with young onset dementia (YOD) need to be age-appropriate, but there is insufficient evidence of ‘what works’ to inform service design and ...
Learning to work together - lessons from a reflective analysis of a research project on public involvement
(2017-01-09)
Background Patient and public involvement (PPI) is now an expectation of research funders, in the UK, but there is relatively little published literature on what this means in practice – nor is there much evaluative research ...
Evaluation of an Organisational Intervention to Promote Integrated Working between Health Services and Care Homes in the Delivery of End-of-Life Care for People with Dementia : Understanding the Change Process Using a Social Identity Approach
(2016-06-03)
In the United Kingdom, approximately a third of people with dementia live in long-term care facilities for adults, the majority of whom are in the last years of life. Working arrangements between health services and care ...
End of life care interventions for people with dementia in care homes : addressing uncertainty within a framework for service delivery and evaluation
(2015-09-17)
Methods: The data from three studies on EoL care in care homes: (i) EVIDEM EoL , (ii) EPOCH , and (iii) TTT EoL were used to inform the development of the framework. All used mixed method designs and two had an intervention ...