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Dementia Friendly Communities in England: A scoping study
(2019-08-01)
Objectives: To describe the characteristics of Dementia Friendly Communities (DFCs) across England in order to inform a national evaluation of their impact on the lives of those affected by dementia. Methods: DFCs in England ...
How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation
(2018-04-13)
Objectives: To explore how embedded patient and public involvement is within mainstream health research following two decades of policy-driven work to underpin health research with patient and public involvement in England. ...
Age-appropriate services for people diagnosed with young onset dementia (YOD): a systematic review
(2017-06-16)
Background: Literature agrees that post-diagnostic services for people living with young onset dementia (YOD) need to be age-appropriate, but there is insufficient evidence of ‘what works’ to inform service design and ...
Learning to work together - lessons from a reflective analysis of a research project on public involvement
(2017-01-09)
Background Patient and public involvement (PPI) is now an expectation of research funders, in the UK, but there is relatively little published literature on what this means in practice – nor is there much evaluative research ...
Evaluation of an Organisational Intervention to Promote Integrated Working between Health Services and Care Homes in the Delivery of End-of-Life Care for People with Dementia : Understanding the Change Process Using a Social Identity Approach
(2016-06-03)
In the United Kingdom, approximately a third of people with dementia live in long-term care facilities for adults, the majority of whom are in the last years of life. Working arrangements between health services and care ...
End of life care interventions for people with dementia in care homes : addressing uncertainty within a framework for service delivery and evaluation
(2015-09-17)
Methods: The data from three studies on EoL care in care homes: (i) EVIDEM EoL , (ii) EPOCH , and (iii) TTT EoL were used to inform the development of the framework. All used mixed method designs and two had an intervention ...
ReseArch with Patient and Public invOlvement: a realisT evaluation: the RAPPORT study
(2015-09-01)
Abstract Background Patient and public involvement (PPI) is a prerequisite for many funding bodies and NHS research ethics approval. PPI in research is defined as research carried out with or by the public rather than to, ...
Living in Uncertain Times: trajectories to death in residential care homes
(2014-09-01)
Abstract Background Older people living in care homes often have limited life expectancy. Practitioners and policymakers are increasingly questioning the appropriateness of many acute hospital admissions and the quality ...
Emergency ambulance service involvement with residential care homes in the support of older people with dementia : an observational study
(2014-08-28)
BACKGROUND: Older people resident in care homes have a limited life expectancy and approximately two-thirds have limited mental capacity. Despite initiatives to reduce unplanned hospital admissions for this population, ...
Exploring resource use and associated costs in end-of-life care for older people with dementia in residential care homes
(2014-06-06)
The goals of this study are to describe end-of-life care costs of older people with dementia (OPWD) residents in care homes (CHs) with no on-site nursing and evaluate the economic case for an intervention designed to improve ...