Do people with intellectual disabilities understand their prescription medication? A scoping review

Smith, Megan, Adams, Danielle, Carr, Claudia and Mengoni, Silvana (2019) Do people with intellectual disabilities understand their prescription medication? A scoping review. Journal of Applied Research in Intellectual Disabilities, 32 (6). pp. 1375-1388. ISSN 1360-2322
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Background: People with intellectual disabilities are more likely to experience poor health than the general population and are frequently prescribed multiple medications. Therefore, it is important that people with intellectual disabilities understand their medication and potential adverse effects. Method: A scoping review explored people with intellectual disabilities' knowledge of prescription medications, their risks and how medication understanding can be improved. Results: Ten journal articles were included. People with intellectual disabilities often lacked understanding of their medication, including its name, purpose and when and how to take it. Participants were often confused or unaware of adverse effects associated with their medication. Information was sometimes explained to carers rather than people with intellectual disabilities. Some interventions and accessible information helped to improve knowledge in people with intellectual disabilities. Conclusion: There is a need for accessible and tailored information about medication to be discussed with people with intellectual disabilities in order to meet legal and best practice standards.

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