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dc.contributor.authorPetty, Julia
dc.contributor.authorJarvis, Joy
dc.contributor.authorThomas, Rebecca
dc.date.accessioned2019-07-29T14:42:33Z
dc.date.available2019-07-29T14:42:33Z
dc.date.issued2019-06-01
dc.identifier.citationPetty , J , Jarvis , J & Thomas , R 2019 , ' Listening to the parent voice to inform person-centred neonatal care. ' , Journal of Neonatal Nursing , vol. 25 , no. 3 , pp. 121-126 . https://doi.org/10.1016/j.jnn.2019.01.005
dc.identifier.issn1355-1841
dc.identifier.otherPURE: 15230878
dc.identifier.otherPURE UUID: 71154338-8d6f-4412-a6df-def43cbc8dc9
dc.identifier.otherScopus: 85062339181
dc.identifier.otherORCID: /0000-0002-3639-2881/work/62750731
dc.identifier.urihttp://hdl.handle.net/2299/21493
dc.description.abstractFamily integrated care (FIC), where parents are an integral part of their baby’s care and decision-making can enhance parental involvement and empowerment, contributing to decreased parental separation and stress. It follows that parents can also be a central part of neonatal education for staff in the neonatal speciality. This paper focuses on what students and staff can learn from parents about what they feel is important to make their experience better. A narrative, interpretive approach was undertaken to collect and analyse parent interview narratives. A specific question was posed to a purposive sample of parents who have had premature babies about what health professionals can learn from them. Thematic analysis revealed five key themes relating to the importance of: communicating; listening; empathising; acknowledging (the parent’s role); realising (what matters to parents). These elements were incorporated into a framework named by the mnemonic, ‘CLEAR’. This highlights what parents want staff to be cognisant of when caring for them and their babies. Learning from the parents in our care enables a greater understanding of their experiences at difficult and challenging times. Having a deeper understanding of parents’ experiences can contribute to enhanced empathic learning.en
dc.format.extent6
dc.language.isoeng
dc.relation.ispartofJournal of Neonatal Nursing
dc.rightsEmbargoed
dc.subjectFamily-integrated learning
dc.subjectNarrative inquiry
dc.subjectNeonatal education
dc.subjectParent experience
dc.subjectMaternity and Midwifery
dc.titleListening to the parent voice to inform person-centred neonatal care.en
dc.contributor.institutionSchool of Health and Social Work
dc.contributor.institutionDepartment of Nursing (Children, Learning Disability and Mental Health) and Social Work
dc.contributor.institutionEducation
dc.contributor.institutionSchool of Education
dc.contributor.institutionCentre for Research in Professional and Work-Related Learning
dc.contributor.institutionDepartment of Nursing, Health and Wellbeing
dc.description.statusPeer reviewed
dc.date.embargoedUntil2020-03-06
dc.identifier.urlhttp://www.scopus.com/inward/record.url?scp=85062339181&partnerID=8YFLogxK
dc.relation.schoolSchool of Health and Social Work
dc.relation.schoolSchool of Education
dc.description.versiontypeFinal Accepted Version
dcterms.dateAccepted2019-06-01
rioxxterms.versionAM
rioxxterms.versionofrecordhttps://doi.org/10.1016/j.jnn.2019.01.005
rioxxterms.licenseref.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/
rioxxterms.typeJournal Article/Review
herts.preservation.rarelyaccessedtrue
herts.rights.accesstypeEmbargoed


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